Profiles

Here, you can find any of the interviews on this site.



Lynn

Lynn has atypical Behçet's disease (a systemic vasculitis), which has damaged the small blood vessels in her heart. She also has ankylosing spondylitis. Lynn wants people to understand just how hard it is to go through a lengthy diagnostic odyssey

  • Background

    Lynn is medically retired from her role as an intensive care nurse and now uses her time and experience for Patient and Public Involvement in research. She is married with...

  • Age at interview 54
  • Sex/Gender Female
  • Steve

    Steve has microscopic polyangiitis (MPA), an ANCA associated vasculitis. This has caused end stage kidney failure and lung scarring. Symptoms first appeared when he was 39 but were not diagnosed until his health suddenly deteriorated 18 months ago.

  • Background

    Steve retired from the advertising business at 55 and is undertaking a PhD. Having cared for his wife when she had cancer, he is widowed and lives alone. Ethnic background:...

  • Age at interview 60
  • Sex/Gender Male