Here, you can find any of the interviews on this site.
Fenella became a PPI representative after taking part in a research project. She works with a local Mental Health Research Network and has been involved in designing and planning research proposals.
Fenella is single and works as a clinical audit assistant in a mental health NHS trust. Ethnic background: White South African
Stephen has been a PPI representative and a member of a teenage and young adult clinical studies group for about nine months. He is particularly interested in cancer research since he was diagnosed with colorectal cancer when he was 15.
When we interviewed him, Stephen was single and living with his parents. Sadly Stephen passed away in May 2014. Stephen became well known for his bucket list wish to raise...
Dave became involved in PPI after his parents were both diagnosed with cancer. He works with various PPI groups at local and national level. He primarily works in lung cancer research.
Dave is married and has one grown up child. He is a retired science teacher. Ethnic background: White.
Ben has only been involved in PPI in health research for about 6 months. He has reviewed Participant Information Sheets for research.
Ben has three children and is divorced. He works as a van sales driver. Ethnic background: White/British.
Following his retirement, David participated in a focus group study to evaluate the experience of stroke survivors and their carers. He became interested in PPI in December 2010 after receiving an online advertisement inviting the public with relevant experience to apply to become lay members of the Stroke Research Network Clinical Studies Group or the Stoke Association Lay Members Panels.
David is married and has two grown-up children. He is a retired senior university lecturer. Ethnic background: White/British.
Roger became involved in PPI in 2006 when his wife died from Motor Neurone Disease (MND). He was keen to help other people who shared similar experiences and felt that becoming involved in research was the best way to do this.
Roger is a widower who has five grown-up children. He is retired, but used to work in transport for people with special needs. Ethnic background: White English.
Kath has been involved in PPI for 11 years. They got involved after her son died. They had been caring for him for 20 years. Kath's extensive involvement in PPI includes reviewing funding proposals for the National Institute for Health Research and Research for Patient Benefit. They are a member of the Collaboration for Leadership in Applied Health Research and Care (CLARHC) for the South West Peninsula, through which they encourage patients and members of the public to suggest ideas for research.
Kath is single. They have one child who is 17 but sadly lost another child after a lengthy chronic illness. They work as a consultant, training lay people to understand...
Beryl has been a PPI volunteer for two years. Her involvement started when her daughter had cancer and she became her carer. She is now part of a voluntary group developing patient information materials for clinical research.
Beryl was an NHS manager for nineteen years. She is divorced and has two children. Ethnic background/ nationality: White English.
