Here, you can find any of the interviews on this site.
Diagnosed with epilepsy in 1964. Tried various drugs but these did not control seizures. In an attempt to have an acceptable quality of life, decided to stop taking anti-epileptic drugs in 2001 and is on a Chinese/macrobiotic diet. Current medication' diazepam (Valium) when needed.
Voluntary work, including running Oxfordshire Epilepsy Support Group; married, 1 adult child.
Diagnosed with epilepsy in 1984, although had the condition throughout childhood as well. Has been seizure free since 1986, though had a status epilepticus episode in 1999 when medication was missed. Current medication' carbamazepine retard (Tegretol Retard) and clobazam (Frisium).
Quality assurance manager; married, 2 children.
Diagnosed with epilepsy in 1981. Tried various drugs and, in 1999, had neurosurgery which reduced the frequency and intensity of seizures. Current medication' gabapentin (Neurontin) and carbamazepine retard (Tegretol Retard) daily, and clobazam (Frisium) around the time of menstruation.
Not employed at time of interview; divorced, 1 child.
Diagnosed with epilepsy in 1989, which was caused by a brain tumour. Had radiotherapy and chemotherapy to treat the tumour, and seizures were reduced considerably. Felt better without medication and decided to stop taking anti-epileptic drugs. Current medication' none.
Not employed at time of interview; single, no children.
Diagnosed with epilepsy in 1953 at around 18 months old. Has tried various drugs which have not controlled the seizures. Current medication' carbamazpine retard (Tegretol Retard) and topiramate (Topamax).
Not employed at time of interview; married, 1 adult child.
Diagnosed with epilepsy in 1994, caused by a benign tumour that was found in 2001. At the time of interview, brain surgery was a possibility and would depend on test results. Current medication' carbamazepine retard (Tegretol Retard) and lamotrigine (Lamictal).
Temping in office admin posts; single, no children.
Diagnosed with epilepsy in 1982. Tried various drugs which did not control seizures. Had neurosurgery in 1984 at the age of 13 and in 1998 at the age of 28. Although there was some improvement in the seizures, epilepsy is poorly controlled. Current medication' carbamazepine retard (Tegretol Retard), vigabatrin (Sabril) and lamotrigine (Lamictal) daily, and clobazam (Frisium) when needed.
Civil servant; single, no children.
Diagnosed with epilepsy in 2000. Tried various drugs which did not control seizures and caused severe side effects. At the time of interview, participant had stopped taking all medication. Current medication' none.
Diagnosed with epilepsy in 2000. Tried various drugs which did not control seizures and caused severe side effects. At the time of interview, participant had stopped taking all medication. Current...
Diagnosed with epilepsy in 1994. Tried various drug treatments, but epilepsy is not controlled. Current medication' phenytoin (Epanutin), phenobarbitone (Gardenal) and levetiracetam (Keppra).
Accountant; married, one child.
Diagnosed with epilepsy in the mid to late 70s. Seizures have been controlled since around 2000. Current medication' carbamazepine (Tegretol) and topiramate (Topamax).
Retired newspaper librarian; single, no children.
