Here, you can find any of the interviews on this site.
Diagnosed in 1996 and 1999 with a brain tumour (medulloblastoma). Treatment 1996: surgery and radiotherapy. Relapse in 1999: tumours found in the brain and spine. Treatment 1999: chemotherapy and bone marrow transplant. Having hormone replacement therapy. In remission.
Educated to university degree level; works part time for a cancer charity. Single; lives in her own flat and parents live nearby. Participates in the activities of TOPS support group.
Matt was diagnosed with tonic-clonic epilepsy at the age of 15. At the moment he has seizures about once a month.
Matt is 24, single and lives in a shared student house. Ethnic background / nationality: White British.
Omar was diagnosed with epilepsy when he was 15. He is on Epilim (sodium valproate) and Keppra (levetiracetam) and has very occasional tonic-clonic seizures.
Omar is 28 and currently unemployed. He is single and lives on his own. Ethnic background / nationality: Asian.
Zo' was diagnosed with epilepsy when she was 16. She is currently on Tegretol Retard (carbamazepine) and her seizures are fairly well controlled.
Zo’ is 22 and a student and an artist. She is single and lives on her own. Ethnic background / nationality: White European.
Robert was diagnosed with epilepsy at 6. His seizures were uncontrolled until he had neurosurgery 10 months before the interview and he has been seizure-free since.
Robert is 17 and a student at college. He is single and lives at home with his mum. Ethnic background / nationality: White British.
James was diagnosed with epilepsy when he was 3. He is now on Epilim (sodium valproate) and Epanutin (phenytoin) and has seizures occasionally.
James is 20 and lives in a residential college for young people with epilepsy where he is a full-time student. Ethnic background / nationality: White British.
Jason was diagnosed with epilepsy when he was 11. He is on Epilim (sodium valproate) and has occasional seizures.
Jason is 19, single and lives in a residential college for young people with epilepsy. Ethnic background / nationality: Mixed (Afro-Caribbean / Caucasian)
Beth was diagnosed with epilepsy at the age of 19. She believes that her epilepsy was triggered by taking recreational drugs when she was a teenager. Her seizures are now controlled and she hasn't used any drugs since her diagnosis.
Beth is 22 and single. Ethnic background / nationality: White British.
Alison is currently on lamotrigine and her seizures are fairly well controlled.
Alison is 23 and full-time student at university. Ethnic background / nationality: White British.
Holly was diagnosed with epilepsy when she was 18 and has had both absence and tonic clonic seizures. She has had a seizure alert dog, Elvis, for 5 years and is hence pretty much seizure-free. She is on pregabalin and Keppra (levetiracetam).
Holly is 26, single and lives on her own. Ethnic background / nationality: White British.
