Profiles

Here, you can find any of the interviews on this site.



Sophie - Interview 15

Sophie was diagnosed with cystic fibrosis when she was 8 years old. She was taught by her parents to do all her own medications and treatments and encouraged to do sport. She is the Social secretary for her university Netball Cub. Sophie has a positive approach to her condition and says that she lives life to the full.

  • Background

    Sophie is a second year university student reading Psychology. Lives in shared accommodation with other female students. Sophie enjoys doing sport as it cleans her chest and makes her feel...

  • Age at interview 19
  • Sex/Gender Female
  • Lynsey - Interview 14

    Lynsey was diagnosed with Cystic fibrosis at birth and says that her parents and now her husband are most supportive. She and her husband would love to have a child and they have discussed all the implications involved in such a decision.

  • Background

    Lynsey lives with her husband and works full-time as an Expert Patient Adviser for the Cystic Fibrosis Trust. Ethnic background/nationality: White British.

  • Age at interview 23
  • Sex/Gender Female
  • Nicola - Interview 13

    Nicola has moderate asthma and needs to take her inhaler everyday to keep her symptoms under control. She does not get many asthma attacks now, but is prone to developing bronchitis which can last for up to a week. Nicola recently saw an asthma nurse and found it most useful. It provided an opportunity to discuss her asthma and treatment in detail.

  • Background

    Nicola studied journalism and public relations and now works for a PA consultancy. She shares a house with other young professional girls. In her experience most people know about asthma....

  • Age at interview 24
  • Sex/Gender Female
  • Jamie - Interview 12

    Jamie has a heart condition called hypoplastic left heart syndrome. He was diagnosed when he was six days old and underwent pioneering and life saving surgery. He gets breathless very easily and is not allowed to play any contact sports. Jamie absolutely loves football so at home he plays it in the garden with his sister and a neighbour.

  • Background

    Jamie lives with his parents and his two sisters. He is not allowed to play any contact sport but he does swimming, cycling and he plays golf once a week....

  • Age at interview 15
  • Sex/Gender Male
  • Rollo - Interview 11

    Rollo thinks that what triggered his ME/CFS was an overdose of vaccinations that he had received at school prior to travelling to Asia. Following this he started having joint pains and became very emotional. He was diagnosed with ME/CFS by an 'alternative practitioner' a few years after getting ill. Says that ME/CFS affects different people in different ways and that doctors should learn to recognise that.

  • Background

    Rollo is a university student and has been living with ME/CFS since the age of fifteen. During term-time he lives in a shared household with other students but he regularly...

  • Age at interview 23
  • Sex/Gender Male
  • Charlotte - Interview 10

    Charlotte was diagnosed with epilepsy at the age of 13. She sees her consultant every three months and feels well supported by her. Her main problems are the frequency, till recently, with which seizures have occurred and the fact that her memory has been affected by the frequent incidence of her 'absence' seizures. Until three months ago Charlotte was having seizures twice a month and sometimes, even as frequently as once a week.

  • Background

    Charlotte is a full-time student doing an Art Foundation course & is planning to go to university after its completion. She lives at home with her mother & younger brother...

  • Age at interview 18
  • Sex/Gender Female
  • Sarah - Interview 29

    Sarah was diagnosed with a localised form of a skin condition called morphea in which there are well demarcated plaques of fibrosis restricted to the skin. In her case this affects the right side of her nose and the top of the right side of her forehead. Recently she has had surgery in which fat from her stomach was injected into the right side of her nose and her forehead and the cheekbones. Doctors have explained that she will need several similar operations before they reconstruct her nose an

  • Background

    Sarah is a full-time student. Lives with her mother and father. Ethnic background/nationality: Welsh.

  • Age at interview 16
  • Sex/Gender Female
  • Andrew - Interview 24

    Andrew has type 1 diabetes and Coeliac Disease. He was diagnosed first with type 1 diabetes when he was 11 years old and was diagnosed with Coeliac 3 years later. He changed his insulin regimen and he finds that the short-acting and long-acting insulin regimen gives him more freedom to choose when and what to eat. He needs to have a gluten-free diet because of his Coeliac which means that he cannot eat wheat, oats, barley and rye. Says that his mother makes very good gluten-free cakes!

  • Background

    Andrew is in high school and lives with his parents and sibling. Ethnic background/nationality: British.

  • Age at interview 16
  • Sex/Gender Male
  • Tomas - Interview 09

    Tomas has had asthma since he was six months old. Apart from asthma, Tomas has developed various allergies and he attends a specialised hospital clinic. He says that the work that Asthma UK does at schools has helped to improve the understanding of the condition among teachers and children.

  • Background

    Tomas attends high school. Lives at home with parents and his brother. His parents have always encouraged and supported him. He is a keen rugby player and thinks that his...

  • Age at interview 16
  • Sex/Gender Male
  • David - Interview 08

    David has had twenty-seven operations in twenty-three years - the main ones including knee and hip replacement, leg straightening and spinal fusion. This meant that he has missed a great deal of schooling but he has always been determined to continue with his education. He finished his GCSE's, did his A' levels and has recently finished his university degree.

  • Background

    David is a university graduate. He was diagnosed with juvenile arthritis when he was just two years old. Lives at home with parents and sisters. He drives a specially fitted...

  • Age at interview 23
  • Sex/Gender Male