Profiles

Here, you can find any of the interviews on this site.



Elisabet - Interview 08

Elisabet was diagnosed in 1990. In 2006, she had deep brain stimulation which was successful and has improved her symptoms considerably.

  • Background

    Married, 2 children, still working as a nutrionist.

  • Age at interview 67
  • Sex/Gender Female
  • Tom - Interview 06

    Tom was 27 when he was diagnosed. His medication includes levodopa. He experiences 'on' and 'off' periods most days. During the on period he may also have dyskinesia. He set up the Cure Parkinson's Trust.

  • Background

    Married, runs cureparkinsons. Org

  • Age at interview 40
  • Sex/Gender Male
  • Alan - Interview 03

    Diagnosed in 1992, Alan can't walk until he has taken his morning medication. He has ballroom dancing lessons once a week which keeps him fit and mobile.

  • Background

    Married, 2 adult children, retired dental laboratory owner.

  • Age at interview 67
  • Sex/Gender Male
  • Hassan - Interview 30

    Hassan has Duchenne Muscular Dystrophy (DMD). Hassan was born in Pakistan but the family has relocated to the UK because he needs specialised medical care. With the help of his home tutor Hassan is writing a story about his experience of living with DMD. Hassan's message to other people living with a chronic condition is never to give up.

  • Background

    Hassan lives with his parents and a younger brother. He has five hours of home tutoring. He would like to attend school but the authorities have failed to find him...

  • Age at interview 18
  • Sex/Gender Male
  • Lynn - Interview 28

    Lynn has lived with chronic pain for the last fourteen years. She experienced the pain before and during her periods. At first health professionals thought that she had endomietrosis. She had several exploratory tests and treatments, but she still does not have a clear diagnosis. She describes her condition as 'a chronic pelvic pain sufferer; or as a chronic lower pain sufferer with a black hole'.

  • Background

    Lynn lives with her long term partner and is expecting their second child. University graduate. Ethnic background/nationality: White British.

  • Age at interview 28
  • Sex/Gender Female
  • Sara - Interview 27

    Sara was diagnosed in 1990 with Juvenile chronic arthritis. She has had a finger tendon repair & a hip replacement. Current medication Anti-TNF Humira injected 2/month, indometacin, co-codamol & Lansoprazole. Says that with her current medication she has more energy to do things like exercise. She attended a Tai Chi course for people with arthritis and really enjoyed it.

  • Background

    Sara lives at home with her mother. Her education has been greatly interrupted by her condition but she did an advanced GNVQ in Information Technology and has applied to do...

  • Age at interview 21
  • Sex/Gender Female
  • Clint - Interview 26

    Clint was infected with HIV at the age of 17 from a partner and, at the time he lacked any knowledge of HIV. Clint rapidly developed the symptoms of the AIDS defining illnesses. Although it was initially suspected he had cancer (a common kind of presentation for AIDS), he in fact had a positive HIV result.

  • Background

    Clint is a twenty-six year old male, diagnosed at 17. He is the founder of young people’s HIV/AIDS charity ‘Health Initiatives www. Healthinitiatives. Org. Ethnic background/nationality: White British.

  • Age at interview 26
  • Sex/Gender Male