Here, you can find any of the interviews on this site.
Tom was 27 when he was diagnosed. His medication includes levodopa. He experiences 'on' and 'off' periods most days. During the on period he may also have dyskinesia. He set up the Cure Parkinson's Trust.
Married, runs cureparkinsons. Org
Diagnosed in 2004, Steve takes Pramipexole. He has tremor in his right arm. He is a member of a running club and trains most days.
Married, 3 children, hotel storeman.
Rex was diagnosed six years ago. His main symptom now is tremor in his right hand and he is still active and mobile.
Married, retired agriculturist.
Diagnosed in 1992, Alan can't walk until he has taken his morning medication. He has ballroom dancing lessons once a week which keeps him fit and mobile.
Married, 2 adult children, retired dental laboratory owner.
Hassan has Duchenne Muscular Dystrophy (DMD). Hassan was born in Pakistan but the family has relocated to the UK because he needs specialised medical care. With the help of his home tutor Hassan is writing a story about his experience of living with DMD. Hassan's message to other people living with a chronic condition is never to give up.
Hassan lives with his parents and a younger brother. He has five hours of home tutoring. He would like to attend school but the authorities have failed to find him...
Lynn has lived with chronic pain for the last fourteen years. She experienced the pain before and during her periods. At first health professionals thought that she had endomietrosis. She had several exploratory tests and treatments, but she still does not have a clear diagnosis. She describes her condition as 'a chronic pelvic pain sufferer; or as a chronic lower pain sufferer with a black hole'.
Lynn lives with her long term partner and is expecting their second child. University graduate. Ethnic background/nationality: White British.
Sara was diagnosed in 1990 with Juvenile chronic arthritis. She has had a finger tendon repair & a hip replacement. Current medication Anti-TNF Humira injected 2/month, indometacin, co-codamol & Lansoprazole. Says that with her current medication she has more energy to do things like exercise. She attended a Tai Chi course for people with arthritis and really enjoyed it.
Sara lives at home with her mother. Her education has been greatly interrupted by her condition but she did an advanced GNVQ in Information Technology and has applied to do...
Clint was infected with HIV at the age of 17 from a partner and, at the time he lacked any knowledge of HIV. Clint rapidly developed the symptoms of the AIDS defining illnesses. Although it was initially suspected he had cancer (a common kind of presentation for AIDS), he in fact had a positive HIV result.
Clint is a twenty-six year old male, diagnosed at 17. He is the founder of young people’s HIV/AIDS charity ‘Health Initiatives www. Healthinitiatives. Org. Ethnic background/nationality: White British.
Donna was diagnosed age 13 with a kidney condition called Mesangiocapillary Glomerulonephritis type II. After diagnosis she was on medication and remained stable for three years. But her condition deteriorated and she needed a kidney transplant. Her mother was her donor. Her sudden deterioration affected her physically and also emotionally. She became depressed and felt rejected and isolated from her then 'group of friends.
Donna lives at home with her mother, stepdad and younger brother. She is recuperating at home from a kidney transplant. Ethnic background/nationality: White British.
Katie was diagnosed with chronic eczema at the age of 11 but her eczema began to get worse in her teen years. She has had lots of different treatments for her eczema and has learned from experience what works and has improved her symptoms. She said that sleep is important as well as drinking plenty of filtered water.
Katie is at university and lives in shared student accommodation. She says that as you grow older it gets easier to accept your eczema and that a positive attitude and...
