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Alison talks about her experiences of three different clinical trials since the birth of her son. Two whilst in the neonatal unit of which one she was not eligible. The third trial involved her son receiving Growth Hormone Treatment.
Alison, aged 39 years is White British, works part time as a music teacher and lives with her husband and three children. Her son was diagnosed with Intrauterine Growth Restriction...
Julie volunteered to take part in a clinical trial, the EAT study, looking at babies and young children developing food intolerances. Julie did not qualify and was turned down. Although disappointed, Julie is very supportive of clinical trials in general.
Julie aged 45 years lives with her husband and son aged three months. Julie works in higher education and is currently on maternity leave. Julie volunteered to take part in...
Linda received an invitation for her youngest child to take part in a clinical trial to test a drug for children with a heart condition. At this time her child was aged two months. Linda agreed to take part.
Linda, aged 43, is White South African, works part-time as a Staff Nurse, is separated and mother of three children; all born in the UK; ages 7, 9 and 15...
Karen enrolled her daughter in a clinical trial for a new Meningitis Vaccine. Karen supports such trials and understands their importance as people take it for granted that vaccines are available for children but that they are reliant on people trialling them.
Karen is aged 29 years, married, mother of her two children and works as a full time Nurse. She describes herself as White British. Karen was invited to enroll her...
Emma enrolled her son in a clinical trial for the Ketogenic Diet when he was aged seven years. She says it is the best thing to have happened to him. Matthew is now off his Ketogenic Diet and Emma says it has changed all their lives for the better.
Emma is aged 42 years, divorced, White British and mother of two children. Her son has experienced seizures since the age of nine months and was diagnosed with Dravet Syndrome...
Whilst Mikey was on a Neonatal Unit Catherine took part in a trial looking at gut and bowel deformities in healthy and poorly babies. Soon after discharge from the Unit Catherine was invited to enroll Mikey onto a vaccine trial, this time she declined.
Catherine is married and mother of their first child Mikey. Until taking maternity leave Catherine worked full time as a Social Worker and describes herself as White British. Catherine was...
John's daughter Chloe was recently admitted to hospital due to a spell of poor health. During this time he was invited to enroll Chloe onto a clinical trial' Control of Hyperglycemia in Paediatrics to which he and his wife agreed.
John is married with four children. John left full time employment to become a full time carer to his daughter Chloe who has cerebral palsy and global developmental delay and...
Tina saw an advert in a local newspaper looking for volunteer children aged between 2 and 12 years to take part in the swine flu vaccine trial. She spoke to her two youngest children who were keen to find out more, which they did, and then they took part in the trial.
Tina is married and mother of three children aged 9, 11 and 18 years. Tina is a self-employed Management Consultant and describes herself as White British.
Steve aged 49 years is married, White British and a full time carer for his wife and son who both have Osteogenesis Imperfecta. Steve has taken part in a Cohort study since the birth of his son who has recently took part in the second stage of the study.
Steve took part in Cohort Asthma Study after the birth of his son. Study continues and his son has now taken part in the second stage of the study to...
