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Rosalynde was diagnosed with Crohn's disease a few months ago and has recently been put on steroids after her initial medication, Pentas salicylatem, was not effective. Rosalynde feels that the extreme tiredness she experiences is the worst aspect of her condition.
Rosalynde is a retired medical representative. She is married and has grown up children. Ethnic background/nationality: Jewish
Linda was diagnosed with Crohn's Disease, aged 15. She has been on medication since and has largely controlled any flare ups with rest and occasional periods on steroids. Linda feels very well supported by her husband and medical team.
Linda is married. Ethnic background/nationality: Jewish British
Aaron and Rebecca found out they were carriers for cystic fibrosis when Rebecca was pregnant and a scan showed a bowel blockage. Their daughter is five and apart from surgery following birth, a bronchoscopy and course of IV antibiotics, has been in good health.
Aaron and Rebecca are married with one child aged 5. Ethnic background/nationality: Jewish.
Two of Nicole's children have been screened for the Tay Sachs gene and are carriers. It's thought the gene was passed down through her husband's family, although Tay Sachs has never been discussed openly in her husband's family.
Nicole works as a caterer and a nursery school teacher. She is married and has three children aged 21, 27 (Katy) and 28. Ethnic background/nationality: Jewish.
After suffering severe abdominal pain and weight loss, Carol was diagnosed with Crohn's Disease aged 26. She had a major resection of her bowel and has remained largely free of Crohn's symptoms.
Carol is a retired administrator and is married. Ethnic background/nationality: Jewish
Harvey was diagnosed with Crohn's Disease aged 17 and had three resections on his intestine. At 56 he was diagnosed with bowel cancer and had the lower part of his bowel removed in a major operation. Harvey would like more support to manage his condition.
Harvey is a retired primary school teacher (and continues to do some supply work). He is married and has had two children. Ethnic background/nationality: British Jewish
Sara's son was diagnosed with Crohn's Disease aged 12. He's had two Parenteral Nutrition courses and a section of diseased intestine removed. Sara felt isolated and unable to talk about her son's illness, however she's since found others with similar experiences.
Sara is married and has several children aged between 11-26 years. Ethnic background/nationality: Jewish White
Sylvia was diagnosed with Crohn's Disease aged 29. She has since had two hemicolectomies and is currently on anti-inflammatory medication. Sylvia's experiences of going out are affected and she feels it is important people don't ignore signs of Crohn's Disease.
Sylvia is a retired social worker. She is a widow and has had two children. Ethnic background/nationality: White British
Goldie was diagnosed with breast cancer in 1989, which was successfully treated. Five years later she was diagnosed with lymphoedema, which she manages with a combination of exercise and arm sleeves. She has since had a knee replacement.
Goldie is married, retired and had 3 children. Ethnic background/nationality: mother Russian/Lithuanian, father Russian/Scottish
Miriam discovered that she carries the gene for Tay Sachs as a teenager. She arranged to marry her husband who does not carry the gene and expects their children will be tested anonymously.
Miriam is a kindergarten teacher and married with five children. Ethnic background/nationality: Orthodox Jewish
