Profiles

Here, you can find any of the interviews on this site.



Miriam - Interview 5

Miriam discovered that she carries the gene for Tay Sachs as a teenager. She arranged to marry her husband who does not carry the gene and expects their children will be tested anonymously.

  • Background

    Miriam is a kindergarten teacher and married with five children. Ethnic background/nationality: Orthodox Jewish

  • Age at interview 47
  • Sex/Gender Female
  • Simone - Interview 4

    Simone was diagnosed with breast cancer after finding a lump in January 2006. She had two lumpectomies followed by chemotherapy and radiotherapy because the cancer had spread to her lymph nodes. She is now on Zoladex injections and tamoxifen.

  • Background

    Simone is a statistician, married and has two children. Ethnic background/nationality: White

  • Age at interview 44
  • Sex/Gender Female
  • Hayley - Interview 3

    Hayley discovered she carried a mutation on the BRCA1 gene after her cousin was diagnosed with ovarian cancer. She has had her ovaries removed and is considering a double mastectomy. Hayley feels it's important to read about the BRCA1 gene and cancer to maintain control.

  • Background

    Hayley a teacher, is married and has three children. Ethnic background/nationality: Jewish

  • Age at interview 39
  • Sex/Gender Female
  • Helen - Interview 2

    Helen's late husband, Ivor was diagnosed with Factor XI Deficiency in 1995, which explained why he had always bruised and bled easily. In 2002, Ivor died from a stroke two days after a minor operation in which he agreed to try a new clotting agent.

  • Background

    Helen is the widow of Ivor. Helen and Ivor had two children, Ruth (an IT consultant, aged 55) and Colin (an accountant, aged 51). Ethnic background/nationality: British/Jewish

  • Age at interview 77
  • Sex/Gender Female
  • Harriet - Interview 1

    Harriet was originally diagnosed with ovarian cancer aged 20 and though she has had some long periods of remission, four recurrences later she remains both vigilant and positive.

  • Background

    Harriet is a management consultant and is married. Ethnic background/nationality: Jewish/Russian/Polish

  • Age at interview 55
  • Sex/Gender Female
  • Dr Boardman

    Dr Shirine Boardman is a committee member for the Association of British Clinical Diabetologists and the British Endocrine Society. She is also a Fellow of the Royal College of Physicians.

  • Background

    Dr Shirine Boardman is a diabetes consultant. She has a special interest in women’s hormonal disorders.

  • Sex/Gender Female
  • Dr Bhalla - Interview 42

    Dr Ashok Bhalla is a consultant rheumatologist at Royal National Hospital for Rheumatic Diseases, Bath.

  • Background

    Dr Ashok Bhalla provides an introduction to osteoporosis. He talks about why osteoporosis occurs, who is most at risk of developing the condition, types of osteoporotic fractures, the role of...

  • Sex/Gender Male
  • Irene - Interview 41

    Diagnosed in 1989 at the age of 49 and put on HRT and sandocal. In March 1990 diagnosed with breast cancer and underwent lumpectomy and radiotherapy; HRT discontinued. First DXA scan in 1998. Now on alendronic acid and Adcal D3. Improvement in bone density and now she has osteopenia rather than osteoporosis.

  • Background

    Retired teacher; married with two adult children. In 1994 she joined a new exercise project for osteoporotic patients run by a local hospital in her city. She exercises three times...

  • Age at interview 68
  • Sex/Gender Female
  • Margery - Interview 40

    Diagnosed in 1994 after a DXA scan revealed severe osteoporosis. Her consultant prescribed Fosamax at first, then added Calcium, Vitamin D and HRT. Currently she carries with the same treatment minus HRT and takes Calcichew D3 Forte. She has regained bone density and is osteopenic.

  • Background

    Margery is married and has two adult children. She is a retired college lecturer. She served as chairman of a local group in Scotland for nine years and a trustee...

  • Age at interview 72
  • Sex/Gender Female
  • Joan - Interview 39

    Around 1994, Joan was prescribed increasing doses of steroid tablets over a nine month period to treat autoimmune haemolytic anaemia. The steroids caused her to develop osteoporosis. She has severe curvature of the spine. Medication; ibandronate infusions.

  • Background

    Married with two daughters, before retirement Joan worked as a local government employee. Her husband is her main carer. Joan’s advice to others ask questions about your condition and medications....

  • Age at interview 88
  • Sex/Gender Female