Profiles

Here, you can find any of the interviews on this site.



Danny - Interview 26

Danny joined a trial of high blood pressure medication, but stopped because of side effects. She has concerns about the way some staff communicated with her and a lack of rapport and respect for her as a volunteer interested in her own health.

  • Background

    Danny is a retired teacher, who now does voluntary work with her grandchildren and their schools. She is married with 2 adult children. Ethnic background/nationality: White, mixed ethnicity.

  • Age at interview 61
  • Sex/Gender Female
  • Marie - Interview 25

    Marie was diagnosed with chronic lymphocytic leukaemia in 1992. She was recently invited to take part in a clinical trial of a new monoclonal antibody. At first she thought she would take part but after reading all the details decided against it.

  • Background

    Marie is a housewife, married, with two grown-up children.

  • Age at interview 69
  • Sex/Gender Female
  • Judith - Interview 24

    Judith agreed to take part in a randomised trial comparing different intervals of chemotherapy treatment for non-Hodgkin's lymphoma. She was allocated to the standard treatment and responded well.

  • Background

    Judith is an NHS administrator. She is married with 1 adult stepdaughter, and a12-year-old son. Ethnic background/nationality: White British.

  • Age at interview 45
  • Sex/Gender Female
  • Angela - Interview 23

    Angela was diagnosed with Parkinson's disease after taking part in a trial on nerve conduction. She has since been in a randomised trial of different drugs for Parkinson's and would happily take part in another trial, despite having had side effects.(Angela is also on our Parkinson's disease site, Interview 10).

  • Background

    Angela is a retired former head teacher and special needs adviser. She is married with two adult sons. Ethnic background/nationality: White British.

  • Age at interview 59
  • Sex/Gender Female
  • Amanda - Interview 22

    Amanda has taken part in a trial of pro-biotic yoghurt for irritable bowel syndrome, and withdrew from a trial about early interventions to prevent diabetes. She is setting up a website for the public to design their own trials.

  • Background

    Amanda, is a doctor, university teacher and researcher. She is married. Ethnic background/nationality: White British.

  • Age at interview 54
  • Sex/Gender Female
  • Pam - Interview 21

    Pam has breast cancer which spread to her bones and liver. She joined an open-label expanded access study of lapatinib and capecitabine, before lapatinib was licensed for general use. She left the study after lapatinib stopped working. (Wife of Tony, Interview 36)

  • Background

    Pam is a retired solicitor and magistrate. She is married with 2 adult children and 3 step-children. Ethnic background/nationality: White Jewish.

  • Age at interview 70
  • Sex/Gender Female
  • Fenella - Interview 20

    Fenella took part in a randomised trial of partial hospitalisation compared to standard community treatment for borderline personality disorder. Results showed the group she was in (partial hospitalisation) had better outcomes.

  • Background

    Fenella is a clinical audit assistant in a mental health NHS trust. She is single. Ethnic background/nationality: White South African, UK citizen.

  • Age at interview 41
  • Sex/Gender Female
  • Sabiha - Interview 19

    Sabiha took part in a trial of breast screening for younger women (under 50). More recently she volunteered for a trial of cholesterol-lowering drugs but was not eligible because her cholesterol level was too low.

  • Background

    Sabiha is a medical secretary and a counsellor. She has 2 children aged 26 and 17. Ethnic background/nationality: Pakistani.

  • Age at interview 53
  • Sex/Gender Female
  • Rosamund - Interview 18

    Rosamund is taking part in a large trial testing the effectiveness of screening for ovarian cancer. She is in the control group, so she has no screening tests but completes regular questionnaires.

  • Background

    Rosamund is a university professor, with 3 adult children. Ethnic background/nationality: White British.

  • Age at interview 64
  • Sex/Gender Female
  • Rose - Interview 17

    Rose took part in a trial for people with inoperable lung cancer, comparing radiotherapy alone with radiotherapy plus chemotherapy. She had just radiotherapy. The trial was stopped early because so few people agreed to take part.

  • Background

    Rose is a retired nurse, divorced, with 2 grown-up children. Ethnic background/nationality: White British.

  • Age at interview 68
  • Sex/Gender Female