Profiles

Here, you can find any of the interviews on this site.



Frank - Interview 03

Frank had discomfort in his penis and was finding urination difficult. A lump emerged on Frank's penis. He saw his GP and was given a preliminary diagnosis of cancer, this was confirmed after a biopsy. Weeks later Frank went on to have a partial penectomy.

  • Background

    Frank is a white male in his 70s. Frank is single with a grown up child, aged 46. He is a retired business development manager by trade at a large...

  • Age at interview 77
  • Sex/Gender Male
  • Rodger - Interview 02

    Rodger first realised there may be something wrong after attending his GP for what he thought were boils in his groin. An examination revealed a small lump on the end of his penis. Tests revealed the lump to be cancerous. Rodger went on to have successful operation to remove the affected area.

  • Background

    Rodger is a white male, married with two grown up children, aged 31 and 28. He is now retired after a career working as an engineer.

  • Age at interview 65
  • Sex/Gender Male
  • Barry - Interview 01

    Barry found what turned out to be a malignant lump on the side of his penis. After having the lump removed Barry had a successful course of chemotherapy and radiotherapy. Unfortunately the cancer returned a number of years later, and Barry had to undergo further surgery to remove the affected area.

  • Background

    Barry is a white male and is trained as an approved electrician. He is not currently married.

  • Age at interview 66
  • Sex/Gender Male
  • Helena - Interview 35

    Helena says that communication is key to her role as Senior Research Nurse. Helena explains how her role helps to support parents and children when they participate in a clinical trial, from beginning to end and after the trial has finished.

  • Background

    Helena is a Senior Research Nurse for the Medicines for Children Research Network. She has been in research for nine years and involved with the various stages of consenting patients...

  • Sex/Gender Female
  • Lauren - Interview 64

    Lauren was invited to take part in a randomised trial to understand better the side effects of background insulin used in the treatment of young teenage girls with Type 1 diabetes and when a carbohydrate diet is followed. Lauren was happy to take part.

  • Background

    Lauren is aged 16, White British and lives with her parents and sibling at home. Lauren attends a local high school and was diagnosed with Type 1 diabetes at the...

  • Age at interview 16
  • Sex/Gender Female
  • Georgia - Interview 63

    Georgia was invited to take part in a research study when she was about five or six years of age, she can't quite remember when. Because her mum and dad said it would be okay and they discussed it with her, she agreed to take part.

  • Background

    Georgia is aged 10, is White British, attends a local school and lives with her mum and siblings. She loves dancing, swimming and athletics and is in the school athletics...

  • Age at interview 10
  • Sex/Gender Female
  • Eden - Interview 62

    Eden was in hospital at the time of being invited to take part in the trial and because she was so poorly can't remember too much about it. Together with her mother she made the decision to take part, but it wasn't easy.

  • Background

    Eden is aged 17, is White British and lives at home with her mother. Eden was diagnosed with Hodgkin’s lymphoma at the age of 16 and very soon after was...

  • Age at interview 17
  • Sex/Gender Female
  • Graham - Interview 61

    The trial was on the treatment of children and young people with Hodgkin's lymphoma. Deciding to take part was confusing because of the different treatment options, but having plenty of information and talking to his parents helped and he agreed to take part.

  • Background

    Graham is aged 16, White British and lives at home with his parents, twin brother and other siblings. He enjoys fishing and attends a local high school. Graham was diagnosed...

  • Age at interview 16
  • Sex/Gender Male
  • Ethan - Interview 60

    Although the doctors and nurses talked to Ethan about the trial, he doesn't remember too much about it. He says it was all a bit too much to take in at the time and he just wanted to get better.

  • Background

    Ethan is aged 12, lives with his parents and his sister at home. He attends a local school and enjoys going to ju jitsu. Ethan was diagnosed with a brain...

  • Age at interview 12
  • Sex/Gender Male
  • Stephanie - Interview 59

    Wegener's granulomatosis is rare among young people and can affect many organs in the body, it can also be life threatening. Stephanie was invited to take part in a trial on improving the treatment of Wegener's granulomatosis and after discussing it with her mum, she agreed to take part.

  • Background

    Stephanie aged 18, of mixed ethnic origin; Greek-English, is a student, and lives with her parents and sibling at home. At the age of 15 Stephanie was diagnosed with Wegener’s...

  • Age at interview 18
  • Sex/Gender Female