Here, you can find any of the interviews on this site.
Roger was married to Teresa, who was diagnosed with bulbar onset MND. She died a year ago, aged 64, less than six months after the diagnosis.
Roger is a mini-bus driver, widowed, with 5 adult children. Ethnic background/nationality: White British.
Brief outline'Sarah was diagnosed 7 years ago when 7 months pregnant with her second baby in 2000. Now she cannot use her arms or walk unaided, and her speech is affected, so she uses voice software to communicate.
Sarah is a full-time mother (formerly secretary), divorced, with 2 children aged 6 and 9. Ethnic background/nationality: White British.
Cordelia was diagnosed a year ago (2005) with MND after investigations for other conditions including spinal muscular atrophy. She now has considerable muscle weakness.
Cordelia is a married housewife with 6 adult children. Ethnic background/nationality: White British.
Penny was diagnosed three years ago (2003) with ALS, after having arm weakness, pains and coughing fits for three years. The condition has progressed quite slowly so far.
Penny is a retired primary school headteacher, married with 2 adult children. Ethnic background/nationality: White British.
She has been able to cope with caring for her husband at home. He attends a day centre and he has regular respite care. She doesn't feel ready to consider full-time residential care for him but has felt it necessary to look out for homes which might be suitable.
Carer who had been a teacher looks after her partner, a former policeman, who has Pick’s dementia at home. Diagnosed in 2000. Between them they have 3 children.
