Profiles

Here, you can find any of the interviews on this site.



Stewart and Marilyn - Interview 29

Stewart was diagnosed with Factor XI Deficiency after falling seriously ill as a result of a liver biopsy.

  • Background

    Stewart and Marilyn are married and have two grown up children. Stewart worked as a taxi driver and Marilyn is a care worker. Ethnic background/ nationality: Jewish

  • Sex/Gender Male
  • Karen - Interview 30

    Karen was diagnosed with ovarian cancer and had a full hysterectomy between chemotherapy sessions. Now in remission, Karen has discovered she carries the BRCA1 mutation.

  • Background

    Karen is a barber. She is divorced and has 2 grown up children. Ethnic background/nationality: White Caucasian

  • Age at interview 48
  • Sex/Gender Female
  • Michelle - Interview 31

    Michelle was diagnosed with breast cancer and had a mastectomy and chemotherapy. She was shocked to discover she has a mutation on the BRCA2 gene and has since had another mastectomy and her ovaries removed.

  • Background

    Michelle is a tutor and housewife. She is married and has 3 children. Ethnic background/nationality: Jewish

  • Age at interview 41
  • Sex/Gender Female
  • Sam - Interview 32

    Sam has Familial Dysautonomia, a hereditary condition which affects the autonomic nervous system. Sam tries to focus on what he can do rather than dwell on the things he can't.

  • Background

    Sam is an actor. Ethnic background/nationality: Jewish.

  • Age at interview 38
  • Sex/Gender Male
  • Marcel - Interview 33

    Marcel was diagnosed with Crohn's disease aged 20. Several years later he had surgery to remove part of his lower bowel.

  • Background

    Marcel is married with two children. He was born to two Holocaust survivor parents and runs Jewish Heritage tours. Ethnic background/nationality: Jewish.

  • Sex/Gender Male
  • Cissie - Interview 34

    Cissie was born with Familial Dysautonomia, a hereditary condition which affects the nervous system. The condition has caused Cissie to experience considerable health issues over the years.

  • Background

    Cissie is a voluntary worker and lives with her parents. Ethnic background/nationality: Jewish

  • Sex/Gender Female
  • Dr and Mrs Koch - Interview 35

    Dr and Mrs Koch had two babies who were born with Tay Sachs disease and died in childhood.

  • Background

    Dr Koch is a retired pathologist. Dr and Mrs Koch have two grown up children. Ethnic background nationality: Jewish

  • Sex/Gender Male
  • Harriet - Interview 1

    Harriet was originally diagnosed with ovarian cancer aged 20 and though she has had some long periods of remission, four recurrences later she remains both vigilant and positive.

  • Background

    Harriet is a management consultant and is married. Ethnic background/nationality: Jewish/Russian/Polish

  • Age at interview 55
  • Sex/Gender Female
  • Gary - Interview 17

    Gary was diagnosed with Gaucher's disease 18 years ago, which was further complicated with a diagnosis of diabetes around the same time. He has since developed Parkinson's disease symptoms as a consequence the Gaucher's disease.

  • Background

    Gary is married with one daughter and is an entertainer. Ethnic background/nationality: White British

  • Age at interview 53
  • Sex/Gender Male
  • Gareth - Interview 15

    Gareth was diagnosed with Crohn's Disease at 13. Over the years he has had major surgery and now has nutritional food line fed directly into an artery in his heart. Crohn's has had a big impact on Gareth's life and he feels positive about the future.

  • Background

    Gareth is a stand up comedian.

  • Sex/Gender Male