Profiles

Here, you can find any of the interviews on this site.



Sheenagh

Sheenagh is 61 and has 3 adult children. She previously ran a boarding kennels, but gave this up to care full-time for her husband Jim. Ethnicity: white Scottish After her husband developed MND, Sheenagh became his full-time carer. Although this was challenging, she is grateful for that time together. Sheenagh has found adapting to life following his death difficult, but has pushed herself to try new things.

  • Background

    Sheenagh is 61 and has 3 adult children. She previously ran a boarding kennels, but gave this up to care full-time for her husband Jim. Ethnicity: white Scottish After her...

  • Age at interview 61
  • Sex/Gender Female
  • Lexi

    Lexi is in her 40s. She is married and works full time. She is white Scottish. Lexi's grandfather died of MND, but it wasn't until her mother was diagnosed more recently that Lexi was told she could be affected in the future. Lexi has decided not to seek pre-symptomatic genetic testing, and instead prefers to make the most of life.

  • Background

    Lexi is in her 40s. She is married and works full time. She is white Scottish. Lexi's grandfather died of MND, but it wasn't until her mother was diagnosed more...

  • Sex/Gender Female
  • John

    John is retired, and previously worked as a project manager in IT. John has a long-term partner. Ethnicity: white British. John was diagnosed with MND in March 2018. Although his mother previously had the disease, he did not initially think it could be hereditary. John feels that knowing what to expect has helped him prepare for the future.

  • Background

    John is retired, and previously worked as a project manager in IT. John has a long-term partner. Ethnicity: white British. John was diagnosed with MND in March 2018. Although his...

  • Age at interview 69
  • Sex/Gender Male
  • Karen

    Karen is 59 and has one adult child. She is retired, but previously worked as head of service in children's social care. Ethnicity: white British. Karen became aware of inherited MND in her family after her mother and uncle were diagnosed. Karen has decided not to have pre-symptomatic genetic testing, though has made positive changes to her life to make the most of each day.

  • Background

    Karen is 59 and has one adult child. She is retired, but previously worked as head of service in children's social care. Ethnicity: white British. Karen became aware of inherited...

  • Age at interview 59
  • Sex/Gender Female
  • Cat

    Gender: Female Ethnicity: White British Background: Catrin is 21 years old and is White British. She has recently finished her university degree. Catrin caught Covid in September 2021 after returning to university. Prior to this she has been studying online from her parents; home. Fatigue was one of her main symptoms.

  • Background

    Gender: Female Ethnicity: White British Background: Catrin is 21 years old and is White British. She has recently finished her university degree. Catrin caught Covid in September 2021 after returning...

  • Age at interview 21
  • June

    Age at interview: 60s Gender: Female Ethnicity: Black Caribbean Background: June is in her 60s and is Black Caribbean. She works for the council as a registrar and is also doing a part-time Masters course. June ordered Covid tests online after feeling unwell in December 2020, which confirmed that she had been infected. As June's symptoms worsened, she called NHS 111 and her GP, who recommended calling an ambulance. A paramedic told her that she would be alright to recover at home. June experienced symptoms of long Covid which lasted for several months.

  • Background

    Age at interview: 60s Gender: Female Ethnicity: Black Caribbean Background: June is in her 60s and is Black Caribbean. She works for the council as a registrar and is also...

  • Mr Eshaan

    Gender: Male Ethnicity: Pakistani Background: Mr Eshaan is 59 years old and is Pakistani. He is married with children, and works as a teacher. Mr Eshaan caught Covid early in the pandemic in March 2020. He became so ill that paramedics had to be called. His wife was forced to make the decision on whether he should be admitted to hospital after being told by paramedics that if they admit him he may not come bac.

  • Background

    Gender: Male Ethnicity: Pakistani Background: Mr Eshaan is 59 years old and is Pakistani. He is married with children, and works as a teacher. Mr Eshaan caught Covid early in...

  • Age at interview 59
  • Stephen

    Initially, Stephen was keener about breastfeeding than his partner Holly, but will support whatever decision she makes once the baby is born. They are leaning towards breastfeeding, mainly because of the health benefits to the baby.

  • Background

    Stephen is White British and does not have HIV. He lives with his partner Holly, who is living with HIV. Holly is pregnant with their first child.

  • Age at interview 37
  • Edward

    Edward and Marella formula fed their first child but are planning to breastfeed their unborn baby.

  • Background

    Edward is White British and does not have HIV. He lives with his wife, Marella, who is living with HIV. They have a two-year-old child, and Marella is eight months...

  • Age at interview 32
  • Amina

    Amina was diagnosed with HIV in 2021, the same day she found out she was pregnant. She is undecided about whether to breastfeed or formula feed her baby.

  • Background

    Amina is British Asian and works in further education. She is married and pregnant with her first baby.

  • Age at interview 23