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Bradley has enthesitis-related juvenile idiopathic arthritis. Initially he struggled to find a diagnosis and paid privately to see different doctors. His arthritis is under control and he has a good relationship with his medical team. Bradley does not let arthritis get him down.
Bradley is at school studying for his GCSEs. He lives with his parents and sister. He has is white British.
Joseph was diagnosed with enthesitis related arthritis at the age of seven. After initial remission his condition flared up again and it became more difficult to control. He was started on Enbrel (etanercept) and has been on remission for the last two years.
British
Peter was diagnosed with multiple sclerosis in 1993. From about 2003 he had a problem of incontinence so started intermittent self-catheterisation, which he found much better than an indwelling catheter. He uses a Conveen during some of the day.
Peter was a specialist fire safety advisor for the NHS before he retired. He is married and has two adult children. Nationality/ethnic background: White British.
When Betty was in her 60's she had surgery to remove a bladder diverticulum. In spite of this her bladder failed to empty completely and she had some incontinence. She was taught her how to use intermittent self-catheterisation and now leads a normal life.
Betty was a school secretary before she retired. She is a widow. She has three grown up children. Ethnic background/nationality: White British
Sid was born with spina bifida. He was incontinent and had to use incontinence pads. When he was about 45 he was told about intermittent self-catheterisation. This has changed his life. It has given him the confidence to go out without fear of embarrassment.
Before Sid retired he worked as a BT engineer. He is married with one grown up child. Ethnic background/nationality: White British.
Rachael was born without a bladder, with a malfunctioning kidney. Doctors created a bladder from part of her bowel. When she was six she was taught to self-catheterise. Despite this she was partially incontinent so when she was 10 she had a Mitrofanoff.
Before Rachael retired due to ill health she worked as an administrator for an insurance company. She is married. Ethnic background/nationality: White British.
Mr Roger Feneley explains why catheters are used. He describes different types of catheter and discusses the advantages and disadvantages of having one or the other. He also talks about urine collection bags and explains how urine infections can be prevented.
Mr Roger Feneley is an Emeritus Consultant Urologist to the North Bristol NHS Trust and Visiting Professor at the University of the West of England. He founded the BioMed Healthcare...
James has been a carer for 20 years and likes his job. He helps Hayley with every aspect of her daily care, including catheter care. Hayley's catheter has made life easier for them both. In particular it has made travelling much less stressful.
James is a full time carer. He cares for Hayley, who has spinal muscular atrophy. He is single. Ethnic background/nationality: White English/Irish.
Rachel looks after Roger, who broke his neck in an accident. Although he is in a nursing home she feels that she need to be with him most of the time to make sure his needs are met. In particular she wants to keep an eye on his suprapubic catheter.
Rachel is an informal carer. She is married. Ethnic background/nationality: White British.
Narelle cared for her husband David at home until it became too difficult. He'd had a major stroke and, later, needed care from four carers. He now lives in a residential care home where Narelle visits him every day. He has a suprapubic catheter.
Narelle is married and has 2 adult children. She is self-employed. Ethnic background / nationality: White British.
