Profiles

Here, you can find any of the interviews on this site.



Catherine

Catherine had been looking after her daughter who was hospitalised after an episode of septic arthritis in her leg when she saw an ad for a PPI member on an allergy, immunity and infection panel. She successfully applied and has been a member for over three years.

  • Background

    Catherine is a self-employed telesales consultant. She is widowed and lives with her 14 year old daughter. Ethnic background: White British.

  • Age at interview 51
  • Sex/Gender Female
  • Anne

    Anne has been interested in health research and has been a patient and public representative for many years. She is particularly interested in research that looks at how the environment influences health. She is a Fellow of the Royal Society of Medicine and a member of the Institute of Physics.

  • Background

    Anne has worked in optics and was a specialist contact lens consultant. She later moved into health research and physics. She is widowed. Ethnic background: White British.

  • Age at interview 81
  • Sex/Gender Female
  • Charles

    Charles has been involved in patient and public involvement in health research for about three years. The majority of his involvement has been in orthopaedic research.

  • Background

    Charles is married and has two grown-up children, aged 44 and 42. He is retired from his job as a research manager. Ethnic background: White British.

  • Age at interview 71
  • Sex/Gender Male
  • Fenella

    Fenella became a PPI representative after taking part in a research project. She works with a local Mental Health Research Network and has been involved in designing and planning research proposals.

  • Background

    Fenella is single and works as a clinical audit assistant in a mental health NHS trust. Ethnic background: White South African

  • Age at interview 41
  • Sex/Gender Female
  • Stephen

    Stephen has been a PPI representative and a member of a teenage and young adult clinical studies group for about nine months. He is particularly interested in cancer research since he was diagnosed with colorectal cancer when he was 15.

  • Background

    When we interviewed him, Stephen was single and living with his parents. Sadly Stephen passed away in May 2014. Stephen became well known for his bucket list wish to raise...

  • Age at interview 18
  • Sex/Gender Male
  • Dave A

    Dave became involved in PPI after his parents were both diagnosed with cancer. He works with various PPI groups at local and national level. He primarily works in lung cancer research.

  • Background

    Dave is married and has one grown up child. He is a retired science teacher. Ethnic background: White.

  • Age at interview 60
  • Sex/Gender Male
  • David Z

    Following his retirement, David participated in a focus group study to evaluate the experience of stroke survivors and their carers. He became interested in PPI in December 2010 after receiving an online advertisement inviting the public with relevant experience to apply to become lay members of the Stroke Research Network Clinical Studies Group or the Stoke Association Lay Members Panels.

  • Background

    David is married and has two grown-up children. He is a retired senior university lecturer. Ethnic background: White/British.

  • Age at interview 68
  • Sex/Gender Male
  • Roger A

    Roger became involved in PPI in 2006 when his wife died from Motor Neurone Disease (MND). He was keen to help other people who shared similar experiences and felt that becoming involved in research was the best way to do this.

  • Background

    Roger is a widower who has five grown-up children. He is retired, but used to work in transport for people with special needs. Ethnic background: White English.

  • Age at interview 65
  • Sex/Gender Male
  • Kath

    Kath has been involved in PPI for 11 years. They got involved after her son died. They had been caring for him for 20 years. Kath's extensive involvement in PPI includes reviewing funding proposals for the National Institute for Health Research and Research for Patient Benefit. They are a member of the Collaboration for Leadership in Applied Health Research and Care (CLARHC) for the South West Peninsula, through which they encourage patients and members of the public to suggest ideas for research.

  • Background

    Kath is single. They have one child who is 17 but sadly lost another child after a lengthy chronic illness. They work as a consultant, training lay people to understand...

  • Age at interview 55