Profiles

Here, you can find any of the interviews on this site.



Jennifer

Jennifer has been involved as a patient and public representative in health research for about five years. She became involved after she began caring for her mother when she developed dementia.

  • Background

    Jennifer is married and has two children, aged 38 and 36. She is a housewife. Ethnic background: Welsh/Jewish.

  • Age at interview 58
  • Sex/Gender Female
  • Francesco

    After having a heart operation, Francesco decided to give up his job. There is a history of heart problems in his family, so he wanted to do things he was passionate about while he still could. He has been a patient and public representative in health research for about 11 years.

  • Background

    Francesco is married with two children, aged 21 and 18. He is retired, but previously worked as a manager of a residential children’s home. Ethnic background: Italian.

  • Age at interview 57
  • Sex/Gender Male
  • Anthony

    Anthony has been involved in health research as a lay representative for about seven years. He started off by volunteering as a research participant and was then invited to join groups as a PPI representative.

  • Background

    Anthony is a retired teacher and education inspector. He has two children aged 43 and 41. Ethnic background: White British.

  • Age at interview 77
  • Sex/Gender Male
  • Brin

    Brin has been involved in PPI in health research for about seven years. He became involved after he had a stroke.

  • Background

    Brin is married with three children, aged 26, 24 and 23. He worked as a secondary school teacher and took early retirement after a stroke. Ethnic background: White/British.

  • Age at interview 54
  • Sex/Gender Male
  • Rosie

    Rosie has been involved in health research as a mental health service user for about 12 years. She began by working as a service user researcher after she was diagnosed with bipolar disorder.

  • Background

    Rosie is divorced. She is a PhD student researching patient and public involvement in research. Ethnic background: White British.

  • Age at interview 55
  • Sex/Gender Female
  • Hazel

    Hazel has been involved in health research as a lay representative for about 6 years. She joined the Medicines for Children Research Network after beginning a long-term campaign to encourage the health service to provide syringes for parents for administering medication to children.

  • Background

    Hazel is married and has three children, aged 36, 31 and 29. She works voluntarily with a charity for children with heart conditions and their families. Ethnic background: Caucasian/European.

  • Age at interview 67
  • Sex/Gender Female
  • Margaret

    Margaret became a PPI representative about three years ago after she was diagnosed with cancer. At that stage PPI in cancer research hadn't been established in Northern Ireland, and she was invited to get involved in implementing it.

  • Background

    Margaret is widowed and has one daughter aged 30. She is retired now, but previously worked providing information and support to patients undergoing radiotherapy. Ethnic background: White British.

  • Age at interview 63
  • Sex/Gender Female