Here, you can find any of the interviews on this site.
Helen started doing PPI about eight years ago. She provides a lay perspective in health and medical research as well as in improving service delivery for patients.
Helen lives with her partner. She previously worked as an educational researcher, but recently began working as a Patient Experience Project Lead within the NHS. Ethnic background: White British.
Maggie has been a patient advocate in research for about 12 years. She got involved in health and medical research after she was diagnosed with breast cancer.
Maggie is retired, but worked as a health visitor for most of her career. Her daughter died of Reyes Syndrome when she was two years old. Ethnic background: White English.
Janice initially became involved in PPI by joining an ethics committee as a lay member. She later went on to become chair of the committee.
Janice is married with one grown-up child, and a grandchild. She is a retired college lecturer. Ethnic background: White/British.
Richard has been a patient and public representative for about 13 years. He got involved after being diagnosed with cancer. During treatment, he kept a diary that was passed from the health professionals and researchers treating him to the chief executive of a national cancer charity, who invited him to help with some research about information-seeking habits of patients.
Richard is single and formerly worked as a senior manager in local government before giving up work to do patient and public involvement. Ethnic background: White British.
Andrew became a lay member on a local research network board after responding to an advertisement in a national newspaper. He thought it would be a good use of his time and the skills he had gained in his career.
Andrew is retired, but he used to work as a teacher before he became assistant director of children’s services. He is married. Ethnic background: White British.
Derek has been a patient PPI representative in health research for about 13 years. He got involved after recovering from throat cancer.
Derek is married. He used to work as a teacher before becoming a freelance public and patient involvement (PPI) training facilitator. Ethnic background: White/Scottish.
Roger has been involved in health and medical research in sarcoma since he became a patient advocate in 2002. He also founded Sarcoma UK, a national charity that aims to provide information and support for patients with the condition, and raises funds for research.
Roger is married and has three daughters, aged 37, 35 and 28, and four grandsons. He is a former television producer and journalist, and has worked as a consultant with...
Nadeem has been trying to get involved as a patient and public representative in health research for about five years, but so far has been unsuccessful.
Nadeem is married with two children, aged 29 and 27. He used to work in local government and now works as an assistant manager in a small retail outlet. Ethnic...
Dave has been doing PPI in health research for about four years. He started as a member of a community panel working to improve patients experience in hospital before getting involved with a research project.
Dave is married and has one daughter, who is 30. He is retired, but worked as a deputy head teacher in a junior school. Before that, he trained as a...
Maxine has been involved in PPI in health research for about 15 years. She has been involved in various aspects of PPI, including a Cochrane review on vitiligo on which she is the lead author.
Maxine is a retired academic librarian. She is married with two children, aged 48 and 42, and has two grandchildren. Ethnic background: Jamaican/British.
