Profiles

Here, you can find any of the interviews on this site.



Salma

Salma has granulomatosis with polyangiitis (GPA), an ANCA associated vasculitis. Since being diagnosed, she has developed other health problems including steroid-induced diabetes, chronic kidney disease, fibromyalgia and high blood pressure.

  • Background

    Salma has been medically retired for 15 years from her job as a hospital administrator. Her primary language is English, but she uses Gujarati with her husband. Ethnic background: Anglo-Indian.

  • Age at interview 51
  • Sex/Gender Female
  • Grant

    Grant has granulomatosis with polyangiitis (GPA), a type of ANCA associated vasculitis. He tries to live as normal a life as he can and is hoping to build up his fitness.

  • Background

    Grant is a self-employed heating and ventilation engineer in the oil and gas industry. He lives with his wife and their two daughters. Ethnic background: White Scottish.

  • Age at interview 34
  • Sex/Gender Male
  • Isabel

    Isabel has giant cell arteritis (GCA), a type of systemic vasculitis. She is delighted with the care she has received.

  • Background

    Isabel worked in a bank from the time she left school until she retired. Her husband died recently, and she has two grown-up children. Ethnic background: White Scottish.

  • Age at interview 76
  • Sex/Gender Female
  • Roberta

    Roberta has giant cell arteritis (GCA), a type of systemic vasculitis. She has been offered a biologic medication to help her come off steroids but worries about the possible side effects of medicines.

  • Background

    Roberta is a retired office and call centre worker. She has three grown-up children and lives with her husband. Ethnic background: White British

  • Age at interview 69
  • Sex/Gender Female
  • Graham

    Graham has a type of systemic vasculitis called giant cell arteritis (GCA). Treatment came too late to avoid permanent sight loss in his right eye, which he describes as life changing.

  • Background

    Graham is a retired chemical engineer. He lives with his wife and they have two grown-up children. Ethnic background: White British.

  • Age at interview 81
  • Sex/Gender Male
  • Brenda

    Brenda has a type of systemic vasculitis called polyarteritis nodosa (PAN), which is under control on medication. She would like to be sure that, if she has a relapse, it will be treated quickly and appropriately.

  • Background

    Brenda is a retired deputy head teacher. She is married with two grown-up children. Ethnic background: White Northern Irish.

  • Age at interview 75
  • Sex/Gender Female
  • Marie

    Marie has been treated for giant cell arteritis (GCA), a type of systemic vasculitis. She also has polymyalgia rheumatica (PMR), fibromyalgia, and knee pain. She struggles with fatigue and is finding it hard to reduce her use of steroids.

  • Background

    Marie lost her job as a result of ill health. She is single and has moved back in with her elderly mum. Marie is passionate about the benefits of singing...

  • Age at interview 57
  • Sex/Gender Female
  • Diane

    When Diane needed emergency heart surgery, it was unclear what had caused the problem. She now knows she has Takayasu arteritis, a type of systemic vasculitis. Diane's care is provided both in Northern Ireland and by a vasculitis specialist in England.

  • Background

    Diane works part-time. She lives with her husband and their two dogs. Ethnic background: White Northern Irish.

  • Age at interview 39
  • Sex/Gender Female
  • Richard

    Richard has giant cell arteritis (GCA), a type of systemic vasculitis. He already had a relatively common condition, polymyalgia rheumatica (PMR), and was aware they can be linked. This meant he recognised symptoms of GCA and sought medical help quickly.

  • Background

    Richard is a retired chartered accountant. He and his wife have two grown-up children. Ethnic background: White British.

  • Age at interview 64
  • Sex/Gender Male
  • Charlie

    Charlie has granulomatosis with polyangiitis (GPA), an ANCA associated vasculitis affecting his lungs, ears, nose, windpipe and pituitary gland. He breathes with the aid of a tracheostomy tube in his neck, sealing it with his finger when he wants to talk.

  • Background

    Charlie is a statistician for large-scale research projects including clinical trials. He lives with his wife and their baby daughter. Ethnic background: White British.

  • Age at interview 28
  • Sex/Gender Male