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Laura's daughter was diagnosed with a cleft palate when she was 3 months of age. Despite Laura's concerns about her daughter's feeding and repeated visits to her GP the cleft palate was undiagnosed, causing a great deal of distress for Laura and her partner. Laura's daughter and her father have also been diagnosed with DiGeorge syndrome (also known as 22q11.2 deletion syndrome).

  • Background

    Laura is a trained nursery nurse and is 22 years of age. Laura and her partner have one daughter aged 6 months. Ethnic background: White British

  • Age at interview 22
  • Sex/Gender Female
  • Maria Y

    Maria's daughter was born with a cleft of the soft palate that was not diagnosed until 24 hours after birth. Maria's daughter was not able to latch to breastfeed and this led to the diagnosis of the cleft palate. Maria and her daughter also have Stickler's syndrome, a condition associated with cleft.

  • Background

    Maria is a primary school teacher. She is married and has a son aged 5 and a daughter of 2 years. Ethnic background: Chinese (Other)

  • Age at interview 41
  • Sex/Gender Female
  • Della

    Della has a 4-year-old daughter and a 14-month-old son. Both of her children were born with Pierre Robin sequence (PRS) and Stickler's syndrome. Both conditions are associated with cleft palate, and both children were born with cleft palate.

  • Background

    Della is single, a homemaker and mother of a daughter and a son. Ethnic background: White British

  • Age at interview 27
  • Sex/Gender Female
  • Tamsin and Andrew

    Tamsin and Andrew have a son born with bilateral cleft lip and palate. They first became aware of their son's cleft lip at their 20-week scan, although he had been closely monitored since their 12-week scan as it was suspected he had a genetic syndrome.

  • Background

    Tamsin and Andrew are married and have a son born with bi-lateral cleft lip and palate and a suspected genetic syndrome. Tamsin is a homemaker and Andrew works as a...

  • Age at interview 29
  • Sex/Gender Male