Profiles

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Mike - Motor Neurone Disease (MND)

Mike was diagnosed with bulbar onset MND 2 years ago in 2005. He is now unable to speak, so was interviewed through his wife Gill. He uses a whiteboard and Lightwriter to communicate. He has a PEG (Percutaneous Endoscopic Gastrostomy).

  • Background

    Mike (aged 54) and Gill (aged 49) are a married couple with 3 adult children. Mike retired as a Fire Master. Gill is a management consultant. Ethnic background/nationality: White British.

  • Age at interview 54
  • Sex/Gender Male
  • Harry - Epilepsy

    Harry is a 20-year-old college student. He is single and lives at home with his parents. Ethnic background / nationality: White British.

  • Background

    Harry has had epilepsy since he was 7. He has had fairly uncontrolled tonic clonic and absence seizures. He changed medication 6 months before the interview and has been doing...

  • Age at interview 20
  • Sex/Gender Male
  • Interview 07- Carers of people with dementia

    Gradual onset mistaken for depression. Diagnosis given jointly to husband and wife. Slow progression. Problem with restlessness and wandering. Very involved with the local Alzheimers disease society. He tries to involve her in decisions where possible. Initially prescribed antidepressants later given trial of Reminyl. Later benefited from sedatives and sleeping tablets.

  • Background

    Carer is a devoted husband who has so far managed to care for his wife at home with respite care every 8 weeks. They have two children. She was diagnosed...

  • Sex/Gender Male
  • Interview 09- Carers of people with dementia

    Her mother, a strong minded widow, bitterly resisted surrendering her freedom and finally had to be sectioned before being transferred to residential care. She died recently twenty years after the first signs of her dementia, in a nursing home.

  • Background

    Carer is the oldest daughter of three children, who over many years found the conflict between responsibilities towards her mother and her young family very difficult. Carer is married but...

  • Age at interview 53
  • Sex/Gender Female
  • Interview 11- Carers of people with dementia

    She managed for a time to care for her mother in her own home which was nearby but eventually had to agree to her going into a nursing home.

  • Background

    Carer is a married teacher with her own family responsibilities (1 daughter 1 granddaughter) looking after her widowed mother. She is the youngest daughter of three children. Her mother was...

  • Sex/Gender Female
  • Interview 15- Carers of people with dementia

    Her mother had been an independent widowed woman. They had hoped when they were able to move her nearby that this arrangement would be adequate for several years but before long she had to go into residential care.

  • Background

    Carer is married with her own family (2 children). She shared decision making with her brother and sister for her widowed mother who was diagnosed in 1998 / 1999.

  • Age at interview 59
  • Sex/Gender Female
  • Interview 54- Carers of people with dementia

    Cared for in her own home, initially supported by cleaner who had been with her for 20 years. Since the cleaner retired they have installed a live in carer. Arrangements for transfer to residential care in the near future are being considered.

  • Background

    Carer is one of 4 daughters looking after their widowed mother. She has two daughters of her own and works as a script editor. Her mother never went to work.

  • Age at interview 45
  • Sex/Gender Female