Profiles

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Dick & Di ' Interview 31

Dick's wife Di was diagnosed with motor neurone disease in 2004. His wife had died 6 months before his interview, aged 64.

  • Background

    Dick is a local government officer, widowed, with two adult stepchildren. Ethnic background: White British

  • Age at interview 55
  • Sex/Gender Male
  • Roger & Luise ' Interview 32

    Wife Luise diagnosed with Motor Neurone Disease in 2004, after a year of weakness in her fingers and leg. Roger and his sons cared for Luise at home until her death in 2006.

  • Background

    Roger is retired from graphic reproduction for the printing trade. He is a widower, with two adult sons. Ethnic background: White British

  • Age at interview 67
  • Sex/Gender Male
  • Una & Bill ' Interview 34

    Her husband first noticed symptoms at the end of 2005 and was diagnosed with Motor Neurone Disease. A ventilator greatly improved his energy levels for nearly a year. He had a PEG fitted but does not yet use it for feeding.

  • Background

    Una is a retired former NHS patient involvement facilitator, married with three adult children (one died recently). Ethnic background: White Irish

  • Age at interview 62
  • Sex/Gender Female
  • Jane & George ' Interview 39

    Jane's husband George was diagnosed with motor neurone disease in 2007. Jane quit her job and became his full-time carer. His MND was fast progressing and he died just 9 months after the diagnosis.

  • Background

    Jane works for the Motor Neurone Disease Association. She is a widower and has three children. Ethnic background: White British

  • Age at interview 44
  • Sex/Gender Female
  • Heather & Bill ' Interview 09

    Heather cared for her husband who had pulmonary fibrosis. Heather talks of her role as a carer and also the need for some activities to help relieve the stress of being a carer.

  • Background

    Heather is a retired GP practice manager. She is a widow and has two adult children. Ethnic background: White British

  • Age at interview 66
  • Sex/Gender Female
  • Savita ' Interview 22

    Savita's husband was diagnosed with motor neurone disease in 2002. In the last year he has deteriorated significantly and now Savita is his full-time carer.

  • Background

    Savita is married with two adult children. She is a retired project analyst. Ethnic background: Indian

  • Age at interview 60
  • Sex/Gender Female
  • Anne & Jim ' Interview 25

    Anne's husband Jim has progressive supranuclear palsy, which is a degenerative disease. Since his diagnosis he has gradually deteriorated to the point where he is now cared for in a nursing home.

  • Background

    Anne is married with two adult daughters. She is a retired personal assistant. Ethnic background: White British

  • Age at interview 75
  • Sex/Gender Female
  • Jacqui & Terry ' Interview 28

    Jacqui's husband Terry was diagnosed with chronic obstructive pulmonary disease (previously known as emphysema) 16 years ago. As his condition worsened Jacqui provided full-time care, which she did for the last 10 years of his life. Terry eventually died peacefully with his family around him.

  • Background

    Jacqui is a widow with three adult children. She is a retired cleaner. Ethnic background: White British

  • Age at interview 60
  • Sex/Gender Female