Profiles

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Paul - Interview 38

Paul's son was diagnosed with diabetes two years ago when he was aged 6 years. Soon after his son's diagnosis Paul was invited to enrol his son in a protocol for a randomised controlled trial to assess hospital versus home management in childhood diabetes.

  • Background

    Paul is aged 29 years, is White British, a full time homemaker and lives with his son aged 8 years.

  • Age at interview 29
  • Sex/Gender Male
  • Gary - Interview 39

    Gary and his son agreed to take part in a randomised trial on the management of diabetes in young people. Gary and his son were randomised to continue to receive the current information and care.

  • Background

    Gary, aged 47, is married with two children. He describes himself as White British and works part-time. His son was diagnosed with diabetes at the age of four years, he...

  • Age at interview 47
  • Sex/Gender Male
  • Sandra - Interview 41

    One year after her daughter's diagnosis, Sandra was invited to enrol her daughter in a ten year trial to follow her daughter's progress. Sandra believes her daughter is still in the trial, although she was unsure.

  • Background

    Sandra aged 46 years is a full time housewife. She has five children. One of her daughters was diagnosed with juvenile dermatomyositis, a rare condition that affects children under the...

  • Age at interview 46
  • Sex/Gender Female
  • Nutan - Interview 45

    Nutan was invited to enrol her daughter in a trial on the management of diabetes among children and young people. The trial was fairly straightforward and involved the completion of questionnaires over a period of three months.

  • Background

    Nutan is Asian Indian, aged 37 years, married and works part time in the retail trade. Her daughter aged five years was diagnosed with diabetes at age 3 years.

  • Age at interview 37
  • Sex/Gender Female
  • Ann - Interview 57

    Soon after Emily was diagnosed, Ann was invited to enrol her daughter in a randomised trial on improving the treatment of Grave's disease. Ann discussed it with Emily and they agreed to take part.

  • Background

    Ann aged 43, is White British, lives with her son and daughter, and works part-time. Her daughter, Emily is aged 12, and was diagnosed with Grave’s disease when she was...

  • Age at interview 43
  • Sex/Gender Female
  • Steve - Interview 03

    Steve aged 49 years is married, White British and a full time carer for his wife and son who both have Osteogenesis Imperfecta. Steve has taken part in a Cohort study since the birth of his son who has recently took part in the second stage of the study.

  • Background

    Steve took part in Cohort Asthma Study after the birth of his son. Study continues and his son has now taken part in the second stage of the study to...

  • Age at interview 49
  • Sex/Gender Male
  • John - Interview 07

    John's daughter Chloe was recently admitted to hospital due to a spell of poor health. During this time he was invited to enroll Chloe onto a clinical trial' Control of Hyperglycemia in Paediatrics to which he and his wife agreed.

  • Background

    John is married with four children. John left full time employment to become a full time carer to his daughter Chloe who has cerebral palsy and global developmental delay and...

  • Age at interview 35
  • Sex/Gender Male
  • Emma - Interview 10

    Emma enrolled her son in a clinical trial for the Ketogenic Diet when he was aged seven years. She says it is the best thing to have happened to him. Matthew is now off his Ketogenic Diet and Emma says it has changed all their lives for the better.

  • Background

    Emma is aged 42 years, divorced, White British and mother of two children. Her son has experienced seizures since the age of nine months and was diagnosed with Dravet Syndrome...

  • Age at interview 42
  • Sex/Gender Female
  • Alison - Interview 25

    Alison became involved with clinical trials when her son was six years old, he is now 22. Alison talks about consenting on behalf of her son to supporting her son in making his own decisions and the reasons for taking part in clinical trials.

  • Background

    Alison, aged 49 years, put her career on hold to care for her son who was diagnosed with Cystic Fibrosis soon after birth; he is now 22. Alison now works...

  • Age at interview 49
  • Sex/Gender Female
  • Jane - Interview 28

    Jane and her daughter both took part in a trial to test the delivery of information and support given to young people with a diagnosis of juvenile diabetes. As this was a non-invasive trial they were both happy to take part.

  • Background

    Jane, aged 41 years, is White British and works full time in Primary School Education. She lives with her husband and their daughter who is 13 years of age. Their...

  • Age at interview 41
  • Sex/Gender Female