Profiles

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Interview 30

Mother discovered through screening in pregnancy that she carries Haemoglobin D Punjab. Her husband is not a carrier. Newborn screening showed her second baby is also a carrier. Video and audio clips in Urdu.

  • Background

    Secretary of own business, husband runs own business. Two children aged 3 years and 18 months. Ethnic background/nationality: Pakistani.

  • Age at interview 37
  • Sex/Gender Female
  • Interview 28

    Newborn screening showed the baby was a sickle cell carrier. The mother had been tested years ago and told she wasn't affected, but a new test showed she was a carrier.

  • Background

    Full-time mother, single, with three children (twins aged 6, baby 4 months). Ethnic background/nationality: half white British, half Jamaican.

  • Age at interview 32
  • Sex/Gender Female
  • Interview 27

    Newborn screening showed the baby was a haemoglobin E carrier. The mother was also found to be a carrier, but the father was not affected.

  • Background

    Married couple with one child aged 4 months. Father aged 35, market trader. Mother aged 29, full-time mother. Ethnic background/nationality: father half Arab, half White British, mother Thai.

  • Sex/Gender Male
  • Interview 26

    The parents were shocked when newborn screening results showed the baby was a sickle cell carrier. Both parents were screened and the mother is also a carrier.

  • Background

    Married couple with one child aged 18 months. Mother aged 30, credit controller. Father aged 35, joiner. Ethnic background/nationality: both White British.

  • Sex/Gender Male
  • Interview 25

    The parents discovered their baby was a sickle cell carrier as a result of newborn screening. They have since learnt the father is a carrier. Video and audio clips in Portuguese.

  • Background

    Partnered couple with one child aged 9 months. Mother aged 18, student. Father aged 22, security officer. Ethnic background/nationality: both Black Portuguese.

  • Sex/Gender Male
  • Interview 23

    Couple knew before marriage they were beta thalassaemia carriers. His sister and two brothers died of beta thalassaemia major. They have tried pre-implantation genetic diagnosis to conceive a baby unaffected by the condition, so far without success. Video and audio clips read by actors.

  • Background

    Married couple with no children. Female partner aged 37, office manager. Male partner aged 51, engineer. Ethnic background/nationality: Both Italian.

  • Sex/Gender Male
  • Interview 20

    Mother asked for screening in pregnancy because of family history and found she was a sickle cell carrier. Newborn screening showed her baby was also a carrier. Her white partner has not been screened. some of the video and audio clips are in French.

  • Background

    Researcher, with one child aged 4, now pregnant again. Husband also a researcher. Ethnic background/nationality: half African, half European.

  • Age at interview 36
  • Sex/Gender Female
  • Interview 19

    Mother who knew she was a sickle cell carrier. Her partner believed he was not a carrier, but her third baby was born with sickle cell anaemia. In this pregnancy she had CVS; the baby is a carrier only.

  • Background

    Registered childminder, with three children aged 13, 11 and 9, now pregnant with new partner. Ethnic background/nationality: Black African.

  • Age at interview 36
  • Sex/Gender Female
  • Interview 16

    Mother discovered she was a beta thalassaemia carrier in first pregnancy. Husband still in Bangladesh and wasn't screened. Son born with beta thalassaemia major but has now had a bone marrow transplant. Video and audio clips in Sylheti.

  • Background

    Married couple with two children aged 11 and 2. Mother aged 31, full-time mother. Father aged 34, unemployed. Ethnic background/nationality: Bangladeshi.

  • Sex/Gender Male
  • Interview 34

    Mother who has a child with sickle cell anaemia diagnosed through newborn screening. If she had known in pregnancy what she now knows about the condition she might have had a termination. Video and audio clips read by an Actor.

  • Background

    Housewife, single, with 3 children. Ethnic background/nationality: Black African.

  • Age at interview 38
  • Sex/Gender Female