Profiles

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Paul - Interview 09

Paul's diagnosis of progressive muscular atrophy was confirmed 2 years ago (2004) after several years of leg pain and weakness. Now unable to walk and he has limited arm movement. Uses a ventilator, but his speech is not affected. He worked until 6 months ago.

  • Background

    Paul is a retired university IT specialist, married with 2 children, aged 17 and 14. Ethnic background/nationality: White British.

  • Age at interview 58
  • Sex/Gender Male
  • James - Interview 16

    James was diagnosed with Primary Lateral Sclerosis (PLS) 15 years ago (1991). His wife also had MND and died 3 years ago, 2 years after her diagnosis.

  • Background

    James is a retired carpenter/joiner, widowed. Ethnic background/nationality: White British.

  • Age at interview 76
  • Sex/Gender Male
  • Peter - Interview 20

    Peter was diagnosed with primary lateral sclerosis (PLS) 8 years ago (1998). Symptoms progressed quickly at first, but now more slowly. His speech was severely affected, so he was interviewed through his wife Ann. His mobility is also affected.

  • Background

    Peter (aged 64) and Ann (aged 58) are a married couple, both retired teachers, with 2 adult children. Ethnic background/nationality: White British.

  • Age at interview 64
  • Sex/Gender Female
  • Hal - Interview 26

    Hal was diagnosed with MND nearly three years ago in 2004. Diagnosis revised to primary lateral sclerosis (PLS) a year ago. His speech is affected, but mobility is still good.

  • Background

    Hal is a retired software company managing director, married with 2 adult children. Ethnic background/nationality: White British.

  • Age at interview 60
  • Sex/Gender Male