Here, you can find any of the interviews on this site.
Karin found out she was a BRCA1 mutation carrier four years ago. She has had a double mastectomy and her ovaries removed.
Karin works as a director/administrator. She is married and has one child. Ethnic background/nationality: Jewish
M was diagnosed with torsion dystonia at 16, five years after developing an unusual gait. As treatment M underwent Deep Brain Simulation, which initially was not successful. With a second opinion, the electrodes were repositioned resulting in more success.
M is married with one child and is self-employed. Ethnic background/nationality: Jewish
Jill was diagnosed with glaucoma in her 60s and has since had her cataracts removed and trabeculectomies performed on both eyes. Four to five months after an Ahmed tube was inserted she experienced complications and had an emergency operation to remove the tube.
Jill is married and has got four grown up children. Jill volunteers for local and national organisations. Ethnic background/nationality: White
Sheila was diagnosed with breast cancer ten years ago and had a lumpectomy followed by radiotherapy. Sheila had to insist to get chemotherapy as it was not initially recommended. She feels more preventative care should be offered on the NHS.
Shelia is a teacher. Ethnic background/nationality: Jewish South African
JP was diagnosed with Crohn's disease aged 21. He had an ilium septum then experienced fifteen years of bowel discomfort before the medication Questran light relieved the symptoms. JP feels Crohn's is linked to anxiety.
JP works in property, he is married with one daughter. Ethnic background/nationality: Jewish
Deborah was diagnosed with a Factor XI Deficiency of less than 1%, aged 45. She has fresh frozen plasma before, during and after any surgery. Her younger son was also found to have a deficiency of less than 1%.
Deborah is a retired secretary/foreign correspondent and translator. She is married with two children. Ethnic background/nationality: Jewish English
Hinda was diagnosed with Crohn's disease fifteen years ago. She had a re-section and has remained on medication since.
Hinda works as a caterer, she is single and has one grown up child. Ethnic background/nationality: Jewish
David was diagnosed with multiple myeloma three years ago. He underwent chemotherapy and stem cell replacement therapy.
David is a retired company director. He is married with two grown up children. Ethnic background/nationality: White British
Caroline, a BRCA 2 mutation carrier, has had a double mastectomy. In the future she will consider whether or not to have her ovaries removed.
Caroline is married and has 3 children. Ethnic background/nationality: White British (Jewish)
Riva was diagnosed with Crohn's disease aged 16 and since has experienced a constant low level of the condition with occasional more severe flare ups and several surgeries. About seven years ago she was also diagnosed with fibromyalgia.
Riva is married with two children.
