Telling the children and grandchildren

Decisions about whether or not to discuss a serious illness with others can be difficult. The need for support has to be weighed up against the desire for privacy. Wanting to protect certain people from distress may also be a consideration. Some of the hardest questions arise when talking to children about cancer.

Almost all those with lung cancer interviewed here were in favour of an open, honest approach. Most had teenage or grown up children. One man said that children will know that something is wrong and that if they are not told it leads to complications later on. He also asserted that children deserve to be told.

Says it wasn’t easy telling the children but recommends being open with everybody.

Age at interview 59

Gender Male

Age at diagnosis 58

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One woman said that she needed to tell her children (who were aged 12, 18 and 20), particularly because she was going to lose her hair while having chemotherapy. She said that she had found a brilliant book at the hospital called ‘How to tell the children’.

People were adamant that older children should be told the truth, even though this was not always easy. One woman was a bit reluctant to tell her grown-up children at first but concluded that she had to tell them because they were well educated and would associate chemotherapy with cancer anyway. A mother of a 12-year-old child said that if you try to hide the facts you will ‘slip up’ and the children will ‘catch you out’.

Children react in different ways when they receive news that a parent has cancer. They may be desperately upset at first, and some may find it hard to talk about the situation. However, many people said that their children had been supportive, (see ‘Feelings of stigma, shame and guilt about having lung cancer’ and ‘How it affects family and friends’).

She decided to tell her children the diagnosis because they were educated and would suspect she…

Age at interview 55

Gender Female

Age at diagnosis 50

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Says that his children reacted to the news of his diagnosis in very different ways.

Age at interview 54

Gender Male

Age at diagnosis 54

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His children were ‘absolutely shattered’ when they first heard about the diagnosis.

Age at interview 67

Gender Male

Age at diagnosis 66

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He thought it important to tell his children the diagnosis, and they have been very supportive.

Age at interview 43

Gender Male

Age at diagnosis 43

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Young children are most concerned with immediate events and may need only simple explanations. Some people talked about their conversations with their grandchildren and the way in which they and their children had explained the situation. Two recalled discussions they had with grandchildren who were aged eight and nine.

Explains how she and her son told her 8-year-old granddaughter about her illness.

Age at interview 62

Gender Female

Age at diagnosis 55

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Explains how his granddaughter was told about his cancer and describes her reaction.

Age at interview 72

Gender Male

Age at diagnosis 72

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One man pointed out that all children are different and that when deciding what to say you have ‘got to pick your child’. He recalled the conversation he had had with his nine-year-old grandchild about death.

He had a conversation with his grandchild about death.

Age at interview 70

Gender Male

Age at diagnosis 69

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One woman who was concerned about the stigma associated with cancer, decided not to ‘burden’ her young grandchildren with news of her disease. Her daughter spoke to the children’s teachers about the situation in case the grandchildren ‘inadvertently’ became aware of the situation.

She did not want to burden her grandchildren by telling them about her illness.

Age at interview 62

Gender Female

Age at diagnosis 62

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