Naveed – Interview 21
Naveed thought that he wasn’t how ‘youngsters were supposed to be’ and saw his first hallucination when he was 5. When he was 16 he was told he had ‘mental health problems and had a breakdown in 2002 during which he couldn’t leave the room for 18 months. Now he does extensive volunteering, and lives with his wife and two children.
Naveed’s mum had TB when she was pregnant with him, and so they left their home in Pakistan. Naveed was put into foster care for a year while she was in hospital having treatment for TB. He thinks that he wasn’t how youngsters were supposed to be’. He said he was a bit of a loner’ and was bullied at school. The first time he remembers seeing something was at the age of 5 when he saw a figure in the garden. He said his father was old school’ but his mum understood. He used to get bad stomach-aches and go to the GP though there was no apparent physical cause. When he was 16 he went to hospital for a range of tests, which came back negative. The doctor said that he thought he had mental health problems. His GP gave him a cassette to listen to which explained about mental health problems. He was angry and was worried he was mad, and thought that people were going to react to him as if he was mad. When he came back from the doctors it was decided that no-one was going to know about these matters outside the family. His parents were worried that within the extended family he might face problems, that he wouldn’t be able to get married, or get a job. He had difficult relationships with the extended family on both sides. He used to talk to his mum but didn’t want to scare her with all the details. His mum would go with him to certain appointments but his dad didn’t want to as he didn’t have time for psychiatrists. He said that working with translators for his mum was difficult particularly because there weren’t Punjabi expressions for schizophrenia, mental health and clinical depression. His father and mother took him to healers, but he knew that there were no such things as jinns [spirits] or jadu [black magic]. However, to make them happy he would go along.
When the voices started he couldn’t quite make it out’ as there were just a lot of voices. As time went on, he got the feeling they were talking about him and to him. There was a female voice that stuck up for him, but there were times that even she turned against him. One morning the voices told him to smother his own daughter, and he was so upset that he wanted to commit suicide, as he could take the criticism of himself but not of his daughter. He has made three serious attempts on his own life during time in which he was sick.
Naveed had a breakdown in 2002, during which he felt unable to leave the room for 18 months. He found that his Asian, Muslim friends had dropped him, and he realised then that his parents weren’t ashamed but were trying to protect him from others. He has had difficulty accessing other services such as dentistry as the receptionists laughed with each other about his having mental health problems. He didn’t want to go out for a bit, which was frustrating as the voices keep him at home anyway, without the additional fear of being ridiculed. He also experienced a locum being scared by the mention of his mental health, and numerous other serious instances of maltreatment when he questioned his medication or talked about suicide attempts. He complained and now has a new doctor. He had brief experience of counselling.
He has encountered prejudice in the community when he was explaining the new psychiatric hospital to people, as the term was translated in Urdu as mad hospital’. He grew up with mainly Asian friends but now has a mixed group of friends, due in part to his involvement with different user groups. He now sees a herbalist, who is a qualified doctor, herbalist and an imam. Naveed has done a lot of work with the service user movement and set up several groups. He also volunteers with his local trust to do some work and leads advocacy groups.