Margaret – Interview 16

Margaret lost her mother at 14, and started hearing voices at 20. She had a serious suicide attempt and was sectioned. She had a year out of college and has worked ever since. She now takes a low dose of sulpiride and has been supported by optimistic friends.

Margaret lost her mother at the age of 14. When she was 15 she had a step-parent and it was quite a difficult time’ as the step-parent was unkind. She stopped eating and went down to 6.5 stone. She was very unhappy and had some horrible’ experiences growing up. Margaret first started hearing voices at the age of 20 and from 20-27 didn’t realise that she was hearing voices. She understood them as people talking about her and couldn’t work out who was doing it’. In her 20s she felt that someone had a vendetta’ against her and ended up making quite a serious suicide attempt. She was admitted to hospital for three months under a section 2. She felt that voices were very clever’ and could take the form of another person’s voice, so that it all appeared to be coming from that person. Then she started hearing them from various electronic devices or smoke alarms, so believed somebody was doing things to her electronically. Now she thinks that the voices are a separate entity’ with its own mind, possibly another facet of her soul, and this can try and trip you up and play games with you every step of the way’. She heard voices inside her head and thought this was being done by satellites. She lived in fear’ for a lot of that period, actually moving to try and get away from her voices. They said We will get you in [place of birth] when you go home in the holidays and they did. Then she experienced 24/7 constant voices, thinking that she would die of fright’. The voices were abusive, threatening and tormented her constantly. She said it was like a horror movie’. She went to London and made a serious suicide attempt’ to try and rid herself of the voices, as her mind was being tortured, suffering acute distress. She went to A&E and then left as she was abandoned to wait alone in a room. She went to her brother’s but then heard messages from her brother on the answer machine saying There’s a gun in the third drawer down’ or There’s some razor blades in the bathroom cupboard’. Later, this showed to her how the voices could imitate real life. Being so distressed she booked herself into a hotel to commit suicide and then panicked’ at the last moment, thinking that she hadn’t quite done the job properly’. She was found in a lift and taken to A&E, and then had to have an operation to repair the damage. After the operation she was in a virtual reality’, thinking she was being experimented on, and wasn’t sure if she was dead or alive. She was admitted to a psychiatric hospital and had a very negative experience of receiving a diagnosis, being told You have a serious, chronic illness which is potentially fatal’ paranoid schizophrenia a diagnosis which she now thinks is detrimental. She was prescribed sulpiride which she still takes, albeit at a low dose. She said that she was lucky as the first one she tried worked for her, although she has experienced amenorrhoea and bone density problems. She had a year out of college, then returned to university, and has been working for ten years since then. Now she doesn’t take any notice of the diagnosis as she doesn’t think it’s very meaningful’. She describes the turning point’ as realising voices could emanate from inside her head, together with the HCAs which played the most important role’ in the hospital. There were very limited talking therapies so all her CBT’ has been DIY’. She has developed various coping strategies over 10 years, including rationalisation and having a sense of humour, and also treats the experience of hearing voices as a challenge. She has good friends who have been optimistic and supported her to do things; this has helped her through the most difficult times. Margaret has experienced two smaller relapses when her medication was being changed. Meditation has helped her considerably, and visual imagery techniques have helped her to explore the inner workings of her mind. Margaret goes to a Buddhist meditation centre.

In 2007 she discovered a more spiritual side to her experiences and received various messages from her mother, through a medium. She got advice via this means which was more helpful than the psychiatrists in the hospitals. The idea that spirits are watching everyone all the time has also helped lessen her paranoia. She attends a spiritualist church and contacted her mum through a medium and her mother told her that her main problem was fear’. She has since worked to get rid of her fear and succeeded. Work has been one of the most important things that have kept her well’.

Margaret was offered CBT, but it never materialised so she developed her own coping strategies to…

Age at interview 41

Gender Female

Age at diagnosis 27

Margaret had a frightening experience at A&E when she thought her heart was stopping.

Age at interview 41

Gender Female

Age at diagnosis 27

Margaret felt that she was able to halve the amount of medication she took as she discovered her…

Age at interview 41

Gender Female

Age at diagnosis 27

Margaret doesn’t believe that voices come just from a ‘chemical imbalance’ and thinks that an…

Age at interview 41

Gender Female

Age at diagnosis 27

Margaret attends a spiritualist church and has developed her understanding of spiritualism.

Age at interview 41

Gender Female

Age at diagnosis 27

Margaret didn’t believe voices were coming from ‘inside her head’ as they sounded too realistic,…

Age at interview 41

Gender Female

Age at diagnosis 27