We had to go every second day and then it came to after every five days. And when, I think, his dressing, they had to change after every five days and then they opened the bandage and they said, “It’s fine, we don’t need to just wrap him around after maybe a month, or maybe six weeks.” And then after that first six weeks, after every two weeks we had to go and check. Because they were concerned about his movements of the arm and the doctor told me that “If you can just use the scar gel frequently, like twice a day for…” it was a long time, I just quit about six months ago, and they said “If you can use the scar gel twice a day, that’s fine. But if you think at any point that his movements are not that better or anything, then we will just give him a steroid injection” which I was trying to avoid. So, I used the scar gel and his movements are fine.

So, I was the one who always took him to the hospital and, after a few weeks they gave me patches and everything and they said “Now you can change the bandages at home. You don’t need to come as frequently: five, six days. So, after every two weeks you have to come back to us and then we can see how he is he doing and if, at any point, we need maybe to change the bandages, the type of bandages or anything then we’ll do it our own, otherwise you have to do it”.

How did that make you feel, having to do the bandages yourself?

It was really scary at the beginning because I was kind of even scared to touch him, but you know, I don’t know, if I will touch him, I don’t know, if I will touch him I will hurt him, and it was bad, horrible and, I was guilty. It was kind of a sad feeling and kind of guilty feeling that, you know, I was the one who did it.

Yeah, they put him in the bath all the time and make him stand in front of me, and because he was only 15 months so he never let me go… So he keeps holding my hand, I would say, and they keep rubbing in front of me and I try to close my eyes but then, every single time I realised, no – I need to open my eyes and look… my baby’s eyes that, you know, ‘Don’t worry, it’s going to be fine.’