Here, you can find any of the interviews on this site.
Charlie has granulomatosis with polyangiitis (GPA), an ANCA associated vasculitis affecting his lungs, ears, nose, windpipe and pituitary gland. He breathes with the aid of a tracheostomy tube in his neck, sealing it with his finger when he wants to talk.
Charlie is a statistician for large-scale research projects including clinical trials. He lives with his wife and their baby daughter. Ethnic background: White British.
Melissa has Behçet's syndrome, a systemic vasculitis which causes oral and genital ulcers, skin lesions, fatigue, and joint pain. She found an electric wheelchair liberating, but it is an ongoing challenge to control the disease and prevent infection.
Melissa is completing a master’s degree, where she is interviewing people to understand the disabling effects of mouth ulcers. During the COVID-19 pandemic she is back living with her parents....
Angharad has Takayasu arteritis, a form of systemic vasculitis which affects large blood vessels. She first had symptoms at 17 and was diagnosed at 24. She would like young women to be taken seriously when they are navigating the healthcare system.
Angharad is a full-time mental health worker. She lives with family and is single. Ethnic background: White Welsh.
After four years of a purple rash which came and went, Katy was diagnosed two years ago with urticarial vasculitis. She has been managing it with steroids but is due to start a new drug, dapsone.
Katy works full-time as a dental nurse and lives with her mum. Ethnic background: White Scottish.
Since Holly suddenly developed granulomatosis with polyangiitis (GPA) - an AAV - aged 19, her health has deteriorated due to flares, medication side effects and additional illnesses. The struggle to access disability benefits has made it harder to cope.
Holly previously lived with friends and her ex-partner and is now back with her mother, who is also her carer. She is not well enough to work or go to...
