Here, you can find any of the interviews on this site.
Mother discovered through screening in pregnancy that she carries Haemoglobin D Punjab. Her husband is not a carrier. Newborn screening showed her second baby is also a carrier. Video and audio clips in Urdu.
Secretary of own business, husband runs own business. Two children aged 3 years and 18 months. Ethnic background/nationality: Pakistani.
Newborn screening showed the baby was a sickle cell carrier. The mother had been tested years ago and told she wasn't affected, but a new test showed she was a carrier.
Full-time mother, single, with three children (twins aged 6, baby 4 months). Ethnic background/nationality: half white British, half Jamaican.
Newborn screening showed the baby was a haemoglobin E carrier. The mother was also found to be a carrier, but the father was not affected.
Married couple with one child aged 4 months. Father aged 35, market trader. Mother aged 29, full-time mother. Ethnic background/nationality: father half Arab, half White British, mother Thai.
The parents were shocked when newborn screening results showed the baby was a sickle cell carrier. Both parents were screened and the mother is also a carrier.
Married couple with one child aged 18 months. Mother aged 30, credit controller. Father aged 35, joiner. Ethnic background/nationality: both White British.
The parents discovered their baby was a sickle cell carrier as a result of newborn screening. They have since learnt the father is a carrier. Video and audio clips in Portuguese.
Partnered couple with one child aged 9 months. Mother aged 18, student. Father aged 22, security officer. Ethnic background/nationality: both Black Portuguese.
Couple knew before marriage they were beta thalassaemia carriers. His sister and two brothers died of beta thalassaemia major. They have tried pre-implantation genetic diagnosis to conceive a baby unaffected by the condition, so far without success. Video and audio clips read by actors.
Married couple with no children. Female partner aged 37, office manager. Male partner aged 51, engineer. Ethnic background/nationality: Both Italian.
Mother asked for screening in pregnancy because of family history and found she was a sickle cell carrier. Newborn screening showed her baby was also a carrier. Her white partner has not been screened. some of the video and audio clips are in French.
Researcher, with one child aged 4, now pregnant again. Husband also a researcher. Ethnic background/nationality: half African, half European.
Mother who knew she was a sickle cell carrier. Her partner believed he was not a carrier, but her third baby was born with sickle cell anaemia. In this pregnancy she had CVS; the baby is a carrier only.
Registered childminder, with three children aged 13, 11 and 9, now pregnant with new partner. Ethnic background/nationality: Black African.
Mother discovered she was a beta thalassaemia carrier in first pregnancy. Husband still in Bangladesh and wasn't screened. Son born with beta thalassaemia major but has now had a bone marrow transplant. Video and audio clips in Sylheti.
Married couple with two children aged 11 and 2. Mother aged 31, full-time mother. Father aged 34, unemployed. Ethnic background/nationality: Bangladeshi.
Mother who has a child with sickle cell anaemia diagnosed through newborn screening. If she had known in pregnancy what she now knows about the condition she might have had a termination. Video and audio clips read by an Actor.
Housewife, single, with 3 children. Ethnic background/nationality: Black African.
