Here, you can find any of the interviews on this site.
The parents discovered their baby was a sickle cell carrier as a result of newborn screening. They have since learnt the father is a carrier. Video and audio clips in Portuguese.
Partnered couple with one child aged 9 months. Mother aged 18, student. Father aged 22, security officer. Ethnic background/nationality: both Black Portuguese.
The parents were shocked when newborn screening results showed the baby was a sickle cell carrier. Both parents were screened and the mother is also a carrier.
Married couple with one child aged 18 months. Mother aged 30, credit controller. Father aged 35, joiner. Ethnic background/nationality: both White British.
Newborn screening showed the baby was a haemoglobin E carrier. The mother was also found to be a carrier, but the father was not affected.
Married couple with one child aged 4 months. Father aged 35, market trader. Mother aged 29, full-time mother. Ethnic background/nationality: father half Arab, half White British, mother Thai.
Newborn screening showed the baby was a sickle cell carrier. The mother had been tested years ago and told she wasn't affected, but a new test showed she was a carrier.
Full-time mother, single, with three children (twins aged 6, baby 4 months). Ethnic background/nationality: half white British, half Jamaican.
Mother knew she was a sickle cell carrier; husband was re-tested when their son was diagnosed with SC disorder, and found he was a haemoglobin C carrier. Child is doing well. Pregnant again at time of interview, no further testing.
Full-time mother (formerly secretary), married to a doctor, one child aged 5, pregnant. Ethnic background/nationality: Nigerian.
First baby diagnosed with sickle cell anaemia after birth. As a Christian, the mother chose not to have prenatal diagnosis in her next pregnancy. The second baby is a carrier. Her third baby is not a carrier. Video and audio clips in French.
Full-time mother, with three children aged 9, 8 and 3. Partner is a driver. Ethnic background/nationality: French African.
