Here, you can find any of the interviews on this site.
Mother who has a child with sickle cell anaemia diagnosed through newborn screening. If she had known in pregnancy what she now knows about the condition she might have had a termination. Video and audio clips read by an Actor.
Housewife, single, with 3 children. Ethnic background/nationality: Black African.
Mother who knew she was a sickle cell carrier. Her partner believed he was not a carrier, but her third baby was born with sickle cell anaemia. In this pregnancy she had CVS; the baby is a carrier only.
Registered childminder, with three children aged 13, 11 and 9, now pregnant with new partner. Ethnic background/nationality: Black African.
Mother asked for screening in pregnancy because of family history and found she was a sickle cell carrier. Newborn screening showed her baby was also a carrier. Her white partner has not been screened. some of the video and audio clips are in French.
Researcher, with one child aged 4, now pregnant again. Husband also a researcher. Ethnic background/nationality: half African, half European.
During first pregnancy couple discovered they were both sickle cell carriers. CVS confirmed the baby did not have the condition and was not a carrier.
Student, single (partnered), in first pregnancy. Ethnic background/nationality: Black African.
Woman with haemoglobin SC disorder. Husband discovered he was a sickle cell carrier. Had CVS in all three pregnancies. The first and second babies had SC disorder, but the third had sickle cell anaemia. Video and audio clips read by an actor.
Married, three children. Ethnic background/nationality: Black African.
Mother has hameoglobin SC disorder; partner is a sickle cell carrier. Had CVS in two pregnancies. In third pregnancy chose not to have diagnosis; baby born with sickle cell anaemia and has since had a stroke, which the mother did not realise could happen.
Full-time mother, single, three children aged 10, 8 and 4. Ethnic background/nationality: Black African.
Mother discovered she was a sickle cell carrier in pregnancy; the baby's father was reluctant to have screening. After the birth, she was shocked to discover the baby had sickle cell anaemia. Video and audio clips read by an actor.
Student, married, one child aged seven months. Ethnic background/nationality: Black African.
His partner had routine screening in pregnancy and found she was a sickle cell carrier, so he also had carrier screening. Results unknown at time of interview. No family history.
Student, single. Female partner pregnant for first time. Ethnic background/nationality: Akan, Ghana.
The couple discovered in pregnancy they were both sickle cell carriers. She felt strongly as a Christian that she did not want any diagnostic tests, and has faith her baby will be healthy.
Former safety engineer, married, first pregnancy. Ethnic background/nationality: Black African.
Mother discovered from antenatal screening she was a carrier of haemoglobin C. The baby's father was no longer in the UK to be screened. A newborn test showed the baby had SC disorder.
Full-time mother, single, one child aged seven months. Ethnic background/nationality: Black African.
