Profiles

Here, you can find any of the interviews on this site.



Interview 23 - Screening for sickle cell and beta thalassaemia

Couple knew before marriage they were beta thalassaemia carriers. His sister and two brothers died of beta thalassaemia major. They have tried pre-implantation genetic diagnosis to conceive a baby unaffected by the condition, so far without success. Video and audio clips read by actors.

  • Background

    Married couple with no children. Female partner aged 37, office manager. Male partner aged 51, engineer. Ethnic background/nationality: Both Italian.

  • Sex/Gender Male
  • Interview 21 - Screening for sickle cell and beta thalassaemia

    Both partners knew they were beta thalassaemia carriers. Second child born with beta thalassaemia major. Mother has had CVS in two pregnancies since, and would terminate the pregnancy if the baby was affected. Video and audio clips read by an actor and recorded in Mirpuri.

  • Background

    Married housewife, four children aged 10, 9, 8 and 2. Husband unemployed. Ethnic background/nationality: Pakistani.

  • Age at interview 31
  • Sex/Gender Female
  • Interview 19 - Screening for sickle cell and beta thalassaemia

    Mother who knew she was a sickle cell carrier. Her partner believed he was not a carrier, but her third baby was born with sickle cell anaemia. In this pregnancy she had CVS; the baby is a carrier only.

  • Background

    Registered childminder, with three children aged 13, 11 and 9, now pregnant with new partner. Ethnic background/nationality: Black African.

  • Age at interview 36
  • Sex/Gender Female
  • Interview 16 - Screening for sickle cell and beta thalassaemia

    Mother discovered she was a beta thalassaemia carrier in first pregnancy. Husband still in Bangladesh and wasn't screened. Son born with beta thalassaemia major but has now had a bone marrow transplant. Video and audio clips in Sylheti.

  • Background

    Married couple with two children aged 11 and 2. Mother aged 31, full-time mother. Father aged 34, unemployed. Ethnic background/nationality: Bangladeshi.

  • Sex/Gender Male
  • Interview 33 - Immunisation

    At time of interview' married, one son, aged 17 months. Parent's occupation' Mother- Editor (Publishing), Father- Web Editor. Ethnic background' White-British.

  • Background

    For DTaP/IPV/Hib’ Followed recommendations of health professionals. For MMR’ She read an independent literature review published in a Drugs and Therapeutics Bulletin on studies examining the link between autism and...

  • Sex/Gender Female