Profiles

Here, you can find any of the interviews on this site.



Mary - Interview 04

Mary is the wife of man diagnosed with MND a year before interview (2003). (Couple also interviewed together - see Jack's story MND03).

  • Background

    Mary is a pharmacy assistant, married with 3 adult children. Ethnic background/nationality: White British.

  • Age at interview 59
  • Sex/Gender Female
  • Roger - Interview 41

    Roger was married to Teresa, who was diagnosed with bulbar onset MND. She died a year ago, aged 64, less than six months after the diagnosis.

  • Background

    Roger is a mini-bus driver, widowed, with 5 adult children. Ethnic background/nationality: White British.

  • Age at interview 59
  • Sex/Gender Male
  • Dick - Interview 42

    Dick was married to Di, who was diagnosed with MND two and a half years ago (2004). She died 6 months ago, aged 64.

  • Background

    Dick is a local government officer, widowed, with 2 adult step-children. Ethnic background/nationality: White British.

  • Age at interview 55
  • Sex/Gender Male
  • Harry - Interview 43

    Harry's wife was diagnosed with bulbar onset MND two and a half years ago. She is now unable to speak. She finds swallowing very difficult, and has a PEG fitted.

  • Background

    Harry is retired, married with 3 adult children. Ethnic background/nationality: White British.

  • Age at interview 73
  • Sex/Gender Male
  • Tess - Interview 44

    Tess met her partner, who had already been diagnosed with MND, when volunteering at a sailing club for disabled people. She now lives with him and is his main carer. (See Marcelin, MND37)

  • Background

    Tess is an office worker, living with partner, 1 adult daughter. Ethnic background/nationality: White British.

  • Age at interview 52
  • Sex/Gender Female
  • Jenny - Interview 01

    Jenny is the daughter of a man who was diagnosed in 2001 with motor neurone disease at the age of 81, and who died 4 months later. He was ill for a year before diagnosis.

  • Background

    Jenny is a married housewife and mother of three children aged 18, 16 and 13. Ethnic background/nationality: White British.

  • Age at interview 49
  • Sex/Gender Female
  • Roger & Luise - Interview 45

    Roger's wife Luise was diagnosed in 2004 aged 59, after a year of weakness in her fingers and leg. Roger and his sons cared for Luise at home until her death in 2006.

  • Background

    Roger retired from graphic reproduction for the printing trade, widowed, with 2 adult sons. Ethnic background/nationality: White British.

  • Age at interview 67
  • Sex/Gender Male
  • Peter & Olivia - Interview 46

    Peter's daughter Olivia (aged 22) died within a year of developing pain and weakness in her leg, in late 2006. Diagnosis of MND remained uncertain, as aspects of her condition were unusual.

  • Background

    Peter is a consultant (heritage projects), married, father of Olivia and one other grown-up daughter. Ethnic background/nationality: White British.

  • Age at interview 62
  • Sex/Gender Male
  • Bev - Interview 47

    Bev's mother died about a year after developing speech and swallowing difficulties and being diagnosed with bulbar onset MND, aged 72. Her family were unhappy with many aspects of the care received.

  • Background

    Bev is a community and education consultant, living with partner. Ethnic background/nationality: White British.

  • Age at interview 40
  • Sex/Gender Female
  • Ann & Barry - Interview 48

    Ann's husband Barry was diagnosed with MND about 10 years ago (1997) at the age of 49, after two years of symptoms and tests. (Since identified as primary lateral sclerosis - PLS).

  • Background

    Ann is a retired hospital administration clerk, married with 2 adult sons. Ethnic background/nationality: White British.

  • Age at interview 54
  • Sex/Gender Female