Profiles

Here, you can find any of the interviews on this site.



Sarah - Interview 21

Sarah was diagnosed 7 years ago when 7 months pregnant with her second baby in 2000. Now she cannot use her arms or walk unaided, and her speech is affected, so she uses voice software to communicate.

  • Background

    Sarah is a full-time mother (formerly secretary), divorced, with 2 children aged 6 and 9. Ethnic background/nationality: White British.

  • Age at interview 41
  • Sex/Gender Female
  • Mike - Interview 23

    Mike was diagnosed with bulbar onset MND 2 years ago in 2005. He is now unable to speak, so was interviewed through his wife Gill. He uses a whiteboard and Lightwriter to communicate. He has a PEG (Percutaneous Endoscopic Gastrostomy).

  • Background

    Mike (aged 54) and Gill (aged 49) are a married couple with 3 adult children. Mike retired as a Fire Master. Gill is a management consultant. Ethnic background/nationality: White British.

  • Age at interview 54
  • Sex/Gender Male
  • Ann - Interview 24

    Ann was diagnosed with bulbar onset MND within the last 6 months (in 2006), after speech and swallowing difficulties. She is about to have a Percutaneous Endoscopic Gastrostomy (PEG).

  • Background

    Ann is a retired speech therapist, widowed with 2 adult children. Ethnic background/nationality: White British.

  • Age at interview 72
  • Sex/Gender Female
  • Vim - Interview 32

    Vim was diagnosed just over a year ago in 2006 with bulbar onset MND. His speech is affected but he can still talk, and he can still walk independently. He has retired early.

  • Background

    Vim is a retired retail manager, married with 2 children aged 25 and 21. Ethnic background/nationality: British Asian.

  • Age at interview 45
  • Sex/Gender Male
  • Sue - Interview 31

    Sue was diagnosed with bulbar onset motor neurone disease less than a year ago (2006). She is now unable to speak and uses a laptop with voice software. Her arms and legs are still relatively strong.

  • Background

    Sue is a retired business administrator, married with 4 children aged 37, 33 and twins aged 22. Ethnic background/nationality: White British.

  • Age at interview 63
  • Sex/Gender Female