Profiles

Here, you can find any of the interviews on this site.



Sophie - Interview 15

Sophie was diagnosed with cystic fibrosis when she was 8 years old. She was taught by her parents to do all her own medications and treatments and encouraged to do sport. She is the Social secretary for her university Netball Cub. Sophie has a positive approach to her condition and says that she lives life to the full.

  • Background

    Sophie is a second year university student reading Psychology. Lives in shared accommodation with other female students. Sophie enjoys doing sport as it cleans her chest and makes her feel...

  • Age at interview 19
  • Sex/Gender Female
  • Hassan - Interview 30

    Hassan has Duchenne Muscular Dystrophy (DMD). Hassan was born in Pakistan but the family has relocated to the UK because he needs specialised medical care. With the help of his home tutor Hassan is writing a story about his experience of living with DMD. Hassan's message to other people living with a chronic condition is never to give up.

  • Background

    Hassan lives with his parents and a younger brother. He has five hours of home tutoring. He would like to attend school but the authorities have failed to find him...

  • Age at interview 18
  • Sex/Gender Male
  • Lynn - Interview 28

    Lynn has lived with chronic pain for the last fourteen years. She experienced the pain before and during her periods. At first health professionals thought that she had endomietrosis. She had several exploratory tests and treatments, but she still does not have a clear diagnosis. She describes her condition as 'a chronic pelvic pain sufferer; or as a chronic lower pain sufferer with a black hole'.

  • Background

    Lynn lives with her long term partner and is expecting their second child. University graduate. Ethnic background/nationality: White British.

  • Age at interview 28
  • Sex/Gender Female
  • Sara - Interview 27

    Sara was diagnosed in 1990 with Juvenile chronic arthritis. She has had a finger tendon repair & a hip replacement. Current medication Anti-TNF Humira injected 2/month, indometacin, co-codamol & Lansoprazole. Says that with her current medication she has more energy to do things like exercise. She attended a Tai Chi course for people with arthritis and really enjoyed it.

  • Background

    Sara lives at home with her mother. Her education has been greatly interrupted by her condition but she did an advanced GNVQ in Information Technology and has applied to do...

  • Age at interview 21
  • Sex/Gender Female
  • Clint - Interview 26

    Clint was infected with HIV at the age of 17 from a partner and, at the time he lacked any knowledge of HIV. Clint rapidly developed the symptoms of the AIDS defining illnesses. Although it was initially suspected he had cancer (a common kind of presentation for AIDS), he in fact had a positive HIV result.

  • Background

    Clint is a twenty-six year old male, diagnosed at 17. He is the founder of young people’s HIV/AIDS charity ‘Health Initiatives www. Healthinitiatives. Org. Ethnic background/nationality: White British.

  • Age at interview 26
  • Sex/Gender Male
  • Donna - Interview 25

    Donna was diagnosed age 13 with a kidney condition called Mesangiocapillary Glomerulonephritis type II. After diagnosis she was on medication and remained stable for three years. But her condition deteriorated and she needed a kidney transplant. Her mother was her donor. Her sudden deterioration affected her physically and also emotionally. She became depressed and felt rejected and isolated from her then 'group of friends.

  • Background

    Donna lives at home with her mother, stepdad and younger brother. She is recuperating at home from a kidney transplant. Ethnic background/nationality: White British.

  • Age at interview 18
  • Sex/Gender Female
  • Katie - Interview 23

    Katie was diagnosed with chronic eczema at the age of 11 but her eczema began to get worse in her teen years. She has had lots of different treatments for her eczema and has learned from experience what works and has improved her symptoms. She said that sleep is important as well as drinking plenty of filtered water.

  • Background

    Katie is at university and lives in shared student accommodation. She says that as you grow older it gets easier to accept your eczema and that a positive attitude and...

  • Age at interview 22
  • Sex/Gender Female
  • William - Interview 22

    William has lived with sickle cell anemia since birth. His mother and father have both got the sickle cell trait but his sister is not affected. When he was a child he remembers that he was in hospital many times. His condition is much improved now that he is older. He takes penicillin and folic acid everyday and says that he does not need to take medication but he does it because his aim is to prevent crisis.

  • Background

    William lives with his mother and sister and plans to go to university next year. William feels that hospitals should build wards for young people. Ethnic background/nationality: African.

  • Age at interview 19
  • Sex/Gender Male
  • Annette - Interview 31

    Annettte was diagnosed with epilepsy when she was 15 years old. Before her diagnosis she was going through what she described as a 'very rebellious phase' and both drinking a great deal and taking illegal drugs. After her diagnosis she stopped taking illegal drugs and nowadays she hardly drinks alcohol at all. Family and friends have been very supportive.

  • Background

    Annette studies full time and lives at home with her parents and two siblings. Ethnic background/nationality: European.

  • Age at interview 19
  • Sex/Gender Female
  • James - Interview 21

    James has a renal condition called Senior Loken Syndrome and it means that his kidneys didn't develop as he grew older. James was diagnosed with his condition when he was eleven years old and since then he has spent much of his time on dialysis. Four times a week he goes to hospital to have dialysis and he is able to attend school two days a week. This condition affects both his kidneys and his eyes and James is now registered blind.

  • Background

    James lives with his mother and two brothers. He attends an ordinary school which also has a unit for partially sighted and blind students. Ethnic background/nationality: White British.

  • Age at interview 16
  • Sex/Gender Male