Profiles

Here, you can find any of the interviews on this site.



Aley - Interview 37

Aley was diagnosed with biphenotypic acute leukaemia (BAL), a mixture of myeloid and lymphoblastic leukaemias, after donating blood. He had no symptoms. Two courses of FLAG-Ida chemotherapy and an allogenic stem cell transplant put him into remission.

  • Background

    Aley is an administrator. He is single and has no children. Ethnic background: Pakistani.

  • Age at interview 33
  • Sex/Gender Male
  • Marilyn - Interview 25

    Marilyn was diagnosed with chronic lymphocytic leukaemia after having a blood test for something else. After 5 years of watch and wait she had oral chemotherapy. After 2 years in remission she had a different oral chemotherapy, which she has just finished.

  • Background

    Marilyn is a retired administrator for Oxfam. She is married with one adult child. Ethnic background: White English.

  • Age at interview 62
  • Sex/Gender Female
  • John - Interview 26

    John was diagnosed with acute promyelocytic leukaemia (a type of acute myeloid leukaemia) after repeated viral infections. He was treated with ATRA (All Trans-Retinoic Acid) and 4 courses of chemotherapy as part of a clinical trial. He is in remission.

  • Background

    John is retired. He is married with no children. Ethnic background: White British.

  • Age at interview 58
  • Sex/Gender Male
  • Len - Interview 27

    Len was diagnosed with chronic lymphocytic leukaemia from a blood test taken as part of a routine BUPA health check. An ultrasound scan showed his spleen was enlarged. Len has no symptoms and visits his consultant every few months for a check.

  • Background

    Len is a retired chartered accountant. He is married with two adult children. Ethnic background: White British (born in South Africa).

  • Age at interview 79
  • Sex/Gender Male
  • Jeff - Interview 29

    Jeff was diagnosed with acute myeloid leukaemia on a blood test after developing an infected navel. He was at increased risk of leukaemia by previously having treatment for polycythaemia. Three courses of chemotherapy put his leukaemia into remission.

  • Background

    Jeff is a retired parcel courier. He is married with three adult children. Ethnic background: White British (Welsh).

  • Age at interview 68
  • Sex/Gender Male
  • Deb - Interview 30

    Deb was diagnosed with acute myeloid leukaemia after developing a fever with cough and tiredness. He was treated with 5 courses of chemotherapy, intrathecal (spinal) chemotherapy and an allogenic stem cell transplant. He is in remission.

  • Background

    Deb is a business consultant. He is married with two children aged 10. Ethnic background: Indian.

  • Age at interview 40
  • Sex/Gender Male
  • Elsa - Interview 31

    Elsa was diagnosed with Myelodysplastic Syndrome (MDS) after being treated for thrombocythaemia, a condition that has caused her strokes. Her MDS was treated with blood transfusions, EPO and G-CSF injections and cyclosporin. She is in remission.

  • Background

    Elsa is a retired business owner. She is divorced with no children. Ethnic background: White British.

  • Age at interview 52
  • Sex/Gender Female
  • Interview 32

    She was diagnosed with chronic lymphocytic leukaemia on a blood test after a hip replacement operation. She was on watch and wait for two and a half years then had chlorambucil chemotherapy and is watching and waiting again. She feels very tired.

  • Background

    She is a retired PA to social workers. She is married with one adult child. Ethnic background: White English.

  • Age at interview 75
  • Sex/Gender Female
  • Deirdre - Interview 33

    Deirdre was diagnosed with chronic lymphocytic leukaemia eighteen years ago after developing swollen lymph glands in her neck. She was on watch and wait for three years and has had two courses of oral chemotherapy since. She is currently very well.

  • Background

    Deirdre is a farmer’s wife. She is married with three adult children. Ethnic background: White British.

  • Age at interview 72
  • Sex/Gender Female
  • Susan - Interview 34

    Susan was diagnosed with myelodysplastic syndrome eleven years ago on a routine blood test. She has not had any treatment and is healthy and enjoying life although she gets tired and has to pace herself. She has a check up every two months.

  • Background

    Susan is a retired teacher. She is widowed with 2 adult children plus 4 step-children. Ethnic background: White British.

  • Age at interview 72
  • Sex/Gender Female