Messages to others about heart failure

The people we talked to passed on messages of advice to others, based on their own experience. People are all different and what works for one person might not work for someone else (see ‘Reaching acceptance about heart failure’). Here are their comments’

  • Take someone with you to consultations – two sets of ears are better than one.

Advises people to take someone with them to consultations so that nothing is missed.

Age at interview 49

Gender Male

Age at diagnosis 46

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  • Prevention is better than cure so pay attention to diet and exercise.
  • Do things that you always did, but take it more slowly.

She tells people to look on the positive side and get on with life.

Age at interview 63

Gender Female

Age at diagnosis 61

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  • Do as you are told by the doctors; take your medicine and do as much exercise as possible.
  • Think about what you can do to help yourself and always ask questions.
  • Take each day as it comes; do what you can and leave what you can’t manage.
  • Don’t spent your time worrying, stay determined and always try.

She trusts in God to look after her and says you must be determined. (Video and audio clips in…

Age at interview 84

Gender Female

Age at diagnosis 82

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  • Take care of your partner and main carer and be patient with him/her.
  • Concentrate on living and don’t dwell on the future.
  • Don’t be afraid.

Hes prepared for death and isn’t afraid.

Age at interview 82

Gender Male

Age at diagnosis 72

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  • Have a cry if you feel like it.
  • Try to face your condition head on and say to yourself ‘I’m going to make the best of my life as it is’.

Encourages people to make the best of their situation and be philosophical.

Age at interview 62

Gender Male

Age at diagnosis 56

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  • Don’t let it make you an invalid. You’re the same as everybody else and you’re not alone.

Tells people not to give up and to carry on as normal.

Age at interview 53

Gender Female

Age at diagnosis 49

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  • It will be with you all the time so you’ve got to learn to put it to the back of your mind.
  • Carry on as normal and hope for the best!
  • Learn to live with it and slow down.
  • Don’t let having heart failure rule your life; just get on with your life.

Advises people to get on with life and do what they want to.

Age at interview 55

Gender Female

Age at diagnosis 53

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  • Accept it because if you don’t you’ll be struggling all the way through.

Specialist heart failure nurses

There is some evidence that follow-up care from nurses specialising in heart failure benefits people coping with heart failure. As yet there is no requirement...