Epilepsy (young people) resources
Young Epilepsy (formerly NCYPE) youngepilepsy.org.uk The UK's leading provider of education, assessment, rehabilitation, treatment and care for children and young people aged 5 to 25 with...
Who made this epilepsy (young people) resource?
Ulla Räisänen
Ulla is a senior researcher with the Health Experiences Research Group, Department of Primary Health Care, University of Oxford. Over the past ten years, she’s worked on research projects in health communication, the experiences of (mental) health and illness, young people’s health and (mental) health in the media, both in Finland and the UK.
Advisory Panel
Anthony Linklater
Epilepsy Specialist Nurse, National Hospital for Neurology & Neurosurgery
Dr Aidan Macfarlane
Independent international consultant in Child and Adolescent Health
Dr Andrew Herxheimer
Clinical pharmacologist, DIPEx Co-founder
Dr Greg Rogers
General Practitioner, Clinical Lead of GPs with a Special Interest in Epilepsy East Kent
Dr Sarah Aylett
Consultant Paediatric Neurologist, GOSH, NCYPE
Finlay Johnson
Student, participant
Helen Purves
Broadcast assistant, participant
Jane Hanna
Director of Epilepsy Bereaved
Professor Ann Jacoby
Professor of Medical Sociology, University of Liverpool
Professor Helen Cross
Professor of Paediatric Neurology and Head of Neurosciences Unit, GOSH
Rona Gibb
Epilepsy Information Manager, The National Society for Epilepsy
Sue Ziebland
Research Director, Health Experiences Research Group, Department of Primary Health Care, University of Oxford.
Dr Suman Prinjha
Senior Researcher, Health Experiences Research Group, Department of Primary Health Care, University of Oxford.
Acknowledgements
Our special thanks go to all the young people who shared their stories with us and made this research possible. We would also like to thank all the people who helped us recruit, especially Professor John Duncan, NSE, Epilepsy Action and NCYPE.
Supported by:
Department of Health