Laura's daughter was diagnosed with a cleft palate when she was 3 months of age. Despite Laura's concerns about her daughter's feeding and repeated visits to her GP the cleft palate was undiagnosed, causing a great deal of distress for Laura and her partner. Laura's daughter and her father have also been diagnosed with DiGeorge syndrome (also known as 22q11.2 deletion syndrome).

• Parents of a child/children diagnosed with cleft and associated conditions (syndromes)

Maria's daughter was born with a cleft of the soft palate that was not diagnosed until 24 hours after birth. Maria's daughter was not able to latch to breastfeed and this led to the diagnosis of the cleft palate. Maria and her daughter also have Stickler's syndrome, a condition associated with cleft.

• Parents of a child/children diagnosed with cleft and associated conditions (syndromes)

Della has a 4-year-old daughter and a 14-month-old son. Both of her children were born with Pierre Robin sequence (PRS) and Stickler's syndrome. Both conditions are associated with cleft palate, and both children were born with cleft palate.

• Parents of a child/children diagnosed with cleft and associated conditions (syndromes)

Tamsin and Andrew have a son born with bilateral cleft lip and palate. They first became aware of their son's cleft lip at their 20-week scan, although he had been closely monitored since their 12-week scan as it was suspected he had a genetic syndrome.

• Parents of a child/children diagnosed with cleft and associated conditions (syndromes)