Here, you can find any of the interviews on this site.
Victoria's husband Hugh has mesothelioma, which is a rare form of cancer normally caused from exposure to asbestos. In Hugh's case a tumour has developed in the space between his lungs and rib cage.
Victoria is a retired teacher. She is married with three adult children. Ethnic background: White British
Last August it was discovered that Keith's wife Pat had a terminal brain tumour. Pat spent some time in a hospice and then returned home, where Keith cared for her. Pat died in November with her family around her.
Keith is a widower with three adult children. He is a retired director of Human Resources. Ethnic background: White British
Roger's wife Teresa was diagnosed with bulbar onset Motor Neurone Disease. She died a year ago, aged 64, less than six months after the diagnosis.
Roger is a mini-bus driver, widowed, with five adult children. Ethnic background: White British
Dick's wife Di was diagnosed with motor neurone disease in 2004. His wife had died 6 months before his interview, aged 64.
Dick is a local government officer, widowed, with two adult stepchildren. Ethnic background: White British
Wife Luise diagnosed with Motor Neurone Disease in 2004, after a year of weakness in her fingers and leg. Roger and his sons cared for Luise at home until her death in 2006.
Roger is retired from graphic reproduction for the printing trade. He is a widower, with two adult sons. Ethnic background: White British
Peter's daughter Olivia died within a year of developing pain and weakness in her leg, in late 2006. Diagnosis of motor neurone disease remained uncertain, as aspects of her condition were unusual.
Peter is a consultant (heritage projects), married, father of Olivia and one other adult daughter. Ethnic background: White British
Her husband first noticed symptoms at the end of 2005 and was diagnosed with Motor Neurone Disease. A ventilator greatly improved his energy levels for nearly a year. He had a PEG fitted but does not yet use it for feeding.
Una is a retired former NHS patient involvement facilitator, married with three adult children (one died recently). Ethnic background: White Irish
In July 2006 David's wife Fiona, who was 40, was diagnosed with pancreatic cancer, which was a shock. She had chemotherapy, which was not effective. She also tried alternative therapies. She died in December 2006. Her death was "largely peaceful".
David is a hydrologist (senior consultant). He is a widower and has two children. Ethnic background: White British
Saba's mother was diagnosed with metastatic pancreatic cancer 4 years ago after having appetite and weight loss. Ten weeks of gemcitabine chemotherapy had no effect on the cancer. She deteriorated gradually and died 11 months after diagnosis.
Saba is a designer. She is single and has no children. Ethnic background: Asian
In 2007 Simon's wife was diagnosed with pancreatic cancer. She was aged 39. She started the TeloVac trial. The chemotherapy was effective but the vaccine was not. She had more chemotherapy and also complementary therapies. She died peacefully in 2009.
Simon is a teacher. He is a widower and has two children. Ethnic background: White British
