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Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
Children’ 2 (aged 12 and 3) and baby died shortly after birth, Occupation’ Mother – full-time mother, Father (age 36 at interview)- engineering inspector, Marital status Married.
Their son was diagnosed with Tricuspid Atresia, a large VSD, ASD, small right ventricle & small pulmonary artery. Treatment Modified BT Shunt & Atrial Septostomy at 24 hrs old. Cardiac catheters & further operations planned when their child is older. Current Medication diuretics, aspirin, sytron, anti-reflux and lactulose. See this person's profile in our section parents of children with congenital heart disease
Age at Interview 3 months old. Age at diagnosis During pregnancy (21 weeks). Parents marital status Married. Occupation Mother-Market Research Adviser, Father-Accountant. No other children. The family live close to...
Their daughter was diagnosed with Hypoplastic Right Heart Syndrome, Tricuspid Valve, Coarctation of the Aorta, Transposition of the Great Arteries. Treatment' A banding operation at 22 hrs old, repeated at 1 week old. A cardiac catheter at 10 months and a CP shunt at 1 yr. Further palliative operations planned. Current Medication' Phenoxybenzamine Hydrochloride. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD06.
Child’s age at Interview’ 15 months. Age at diagnosis During pregnancy (20 weeks). Parents marital status Married. Occupation’ Full time Mum, Father-Postman. Other children’ One older child. The family live...
Their son was diagnosed with Hypoplastic Left Ventricle, VSD, Mitral Atresia, Pulmonary Atresia, Right Atrial Isomerism, aorta arising from the right ventricle, TAPVD and Bilateral Superior Vena Cava and no spleen. Treatment' modified BT shunt (6 days old) open heart surgery (3 months and 6 months), 1st stage Fontan (10 months). Further surgery planned. Current medication' Warfarin, Enanapril, Frusemide, Penicillin. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD07.
Diagnosed during pregnancy (32 weeks). Parents marital status Married. Occupation’ Mother-Civil Servant, Father-Police Officer. Other children’ Two older children and a younger sister. The family live close by to a...
Their daughter was diagnosed with ostium primum Atrial Septal Defect (ASD). Treatment' Surgery at 18 months old to close the hole with a dacron patch. Stitches in the mitral valve. No further surgery planned. Current medication' none. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD12.
Child’s age at Interview’ 3.5 years. Age at diagnosis during pregnancy (24 weeks). Parents marital status married. Occupation’ Mother-Doctor, Father-Doctor. Other children’ One older child. The family live close by...
Their son was diagnosed with a complete Atrioventricular Septal Defect (AVSD), pulmonary atresia and right atrial isomerism. Other problems No spleen and mal-rotation of the gut. Treatment' A BT shunt at 24 hrs old, followed by the Glenn procedure at 6 months. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD14.
Diagnosed during pregnancy (22 weeks). Parents marital status single. Occupation’ Full time mum. Other children’ A twin brother and one older child. The family live close by to a specialist...
Their daughter was diagnosed with pulmonary atresia, VSD & an overiding aorta. Treatment' closed heart surgery (shunt) at 11 days old, closed heart surgery (shunt) at 11 months old. Corrective open heart surgery at 2' yrs old. Current medication' none. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD30.
Diagnosed at 10 days old. Parents marital status married. Occupation’ M-Full time mum (trained as GP), F-Curate. Other children’ one younger child. The family lived close by to a Specialist...
Following two miscarriages, during next pregnancy had frequent scans. A scan at 8 months unexpectedly found hydrocephalus and brain problems. Termination offered but rejected.
Children’ 2 (ages 10 years; 15 months), Occupation’ Full-time carer, Marital status Single.
After four miscarriages, scan in fifth pregnancy found heart defects. Couple decided to continue the pregnancy. Son, now 4, has had some additional problems. Pregnant at time of interview.
Children’ 1 (age 4), Occupation’ Mother – Office manager, Father – printer, Marital status Married.
Down's syndrome suspected at nuchal scan. Couple declined amniocentesis and continued with the pregnancy. Further scans suggested heart problems (operated on successfully since baby's birth).
Children’ 1 (age 14 months), Occupation’ Mother – full-time mother, Father (age 33 at interview) – painter and decorator, Marital status Married.
