Here, you can find any of the interviews on this site.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
Children’ One baby, 8 months, Occupation’ Mother – lecturer, Father – lecturer, Marital status Married.
Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
Children’ 2 (aged 12 and 3) and baby died shortly after birth, Occupation’ Mother – full-time mother, Father (age 36 at interview)- engineering inspector, Marital status Married.
Down's syndrome detected by amniocentesis in first pregnancy. Couple decided to end the pregnancy. Baby son born since.
Children’ First pregnancy ended at 17 weeks. 1 child aged 11 months, Occupation’ Mother – Job Centre Admin Officer, Father – Job Centre Executive Officer, Marital status Married.
Their son was diagnosed with Tricuspid Atresia, a large VSD, ASD, small right ventricle & small pulmonary artery. Treatment Modified BT Shunt & Atrial Septostomy at 24 hrs old. Cardiac catheters & further operations planned when their child is older. Current Medication diuretics, aspirin, sytron, anti-reflux and lactulose. See this person's profile in our section parents of children with congenital heart disease
Age at Interview 3 months old. Age at diagnosis During pregnancy (21 weeks). Parents marital status Married. Occupation Mother-Market Research Adviser, Father-Accountant. No other children. The family live close to...
Their daughter was diagnosed with Hypoplastic Right Heart Syndrome, Tricuspid Valve, Coarctation of the Aorta, Transposition of the Great Arteries. Treatment' A banding operation at 22 hrs old, repeated at 1 week old. A cardiac catheter at 10 months and a CP shunt at 1 yr. Further palliative operations planned. Current Medication' Phenoxybenzamine Hydrochloride. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD06.
Child’s age at Interview’ 15 months. Age at diagnosis During pregnancy (20 weeks). Parents marital status Married. Occupation’ Full time Mum, Father-Postman. Other children’ One older child. The family live...
Their son was diagnosed with Hypoplastic Left Ventricle, VSD, Mitral Atresia, Pulmonary Atresia, Right Atrial Isomerism, aorta arising from the right ventricle, TAPVD and Bilateral Superior Vena Cava and no spleen. Treatment' modified BT shunt (6 days old) open heart surgery (3 months and 6 months), 1st stage Fontan (10 months). Further surgery planned. Current medication' Warfarin, Enanapril, Frusemide, Penicillin. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD07.
Diagnosed during pregnancy (32 weeks). Parents marital status Married. Occupation’ Mother-Civil Servant, Father-Police Officer. Other children’ Two older children and a younger sister. The family live close by to a...
Their daughter was diagnosed with ostium primum Atrial Septal Defect (ASD). Treatment' Surgery at 18 months old to close the hole with a dacron patch. Stitches in the mitral valve. No further surgery planned. Current medication' none. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD12.
Child’s age at Interview’ 3.5 years. Age at diagnosis during pregnancy (24 weeks). Parents marital status married. Occupation’ Mother-Doctor, Father-Doctor. Other children’ One older child. The family live close by...
Normal first pregnancy; some early scanning after bleeding in first trimester. Screening includes nuchal translucency scan and blood testing.
Children’ First pregnancy, Occupation’ Publishing editor, Marital status Married.
Their son was diagnosed with a complete Atrioventricular Septal Defect (AVSD), pulmonary atresia and right atrial isomerism. Other problems No spleen and mal-rotation of the gut. Treatment' A BT shunt at 24 hrs old, followed by the Glenn procedure at 6 months. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD14.
Diagnosed during pregnancy (22 weeks). Parents marital status single. Occupation’ Full time mum. Other children’ A twin brother and one older child. The family live close by to a specialist...
Their daughter was diagnosed with pulmonary atresia, VSD & an overiding aorta. Treatment' closed heart surgery (shunt) at 11 days old, closed heart surgery (shunt) at 11 months old. Corrective open heart surgery at 2' yrs old. Current medication' none. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD30.
Diagnosed at 10 days old. Parents marital status married. Occupation’ M-Full time mum (trained as GP), F-Curate. Other children’ one younger child. The family lived close by to a Specialist...
