Here, you can find any of the interviews on this site.
Jago and Wilf are cousins. Both were diagnosed with Alport Syndrome as children when they began experiencing hearing problems. They both try to keep healthy and plan to go travelling after finishing their studies.
Jago and Wilf are full-time students. Ethnicity: White British
Katie and Sarah are sisters. Both were diagnosed with Alport syndrome in their early teens. Neither of them have any symptoms. They both try and keep healthy, and plan to go travelling after their studies.
Sarah, aged 18, is a full-time student at a local college. Katie, who is 15, is at school. Ethnicity: White British
Patrick was diagnosed with X-linked Alport Syndrome at a very young age due to a family history of Alport Syndrome. Alport Syndrome has primarily affected his hearing so far, but Patrick expects to have a kidney transplantation as soon as his kidneys start declining. In general, Patrick feels that with social support Alport Syndrome doesn't have to be a life changing condition.
Patrick is in his last year of college. His family are part of a national charity and support group for people with Alport syndrome, and Patrick is active in awareness-raising...
