Profiles

Here, you can find any of the interviews on this site.



Mariam

Mariam had hearing loss from the age of 8. Shortly after at the age of 10 she experienced kidney failure and was put on the transplant list. She had a kidney transplant at the age of 12.

  • Background

    Mariam had kidney failure at the age of 10. She had a transplant when she was 12 years old. She is currently studying for a Higher National Certificate at a...

  • Age at interview 21
  • Sex/Gender Female
  • Michael Y

    Michael was diagnosed with X-linked Alport syndrome very recently at age 24. He has few symptoms and has recently started blood pressure medication. He feels overall that Alport syndrome is more of an inconvenience and doesn't let it affect his enjoyment of life. He is looking forward to travelling and living abroad in the future.

  • Background

    Michael was diagnosed with X-linked Alport syndrome at the age of 24. He is currently a full-time student. Ethnicity: White British

  • Age at interview 25
  • Sex/Gender Male