We believe that some of the most valuable advice and support can come from people who are facing the same health condition or challenge in life. We aim to provide you with balanced information about the experience of everyday life with a range of health conditions and issues, what to expect both physically and mentally, overcoming practical difficulties, making decisions about treatment and talking to health professionals.

On this website, each section is divided up into pages to cover the important topics including things like ‘going to the doctor’, ‘effect on school or work’, ‘self-help’ and ‘money’. These aim to help you to find out what to expect and what help is available. If you find a person who particularly interests you, you can visit their individual profile page to get their full story.

You can also scrapbook videos, people’s profiles and webpages that interest you, so that they are saved in one place for you to come back to later or share with friends and family. Signing up for Scrapbooks is free and quick.