Fflur – Interview 49

Fflur was diagnosed with overlap connective tissue disease with features of arthritis, scleroderma and dermatomyositis at the age of 11 years. She recently took part in a study to find the best way of taking blood samples.

Fflur aged 12, is Welsh, attends a local school and lives with her parents and five brothers and sisters. When she was 11 Fflur was diagnosed with overlap connective tissue disease with features of arthritis, scleroderma and dermatomyositis. Recently she took part in a study to help find the best way of taking blood samples. This involved having blood samples with injections and a blood spot test that involves a simple pin prick to the finger.

The study lasted for three months. The first month Fflur had a blood sample the usual way and a pin prick sample taken at the hospital. The second and third month Fflur did the pin prick test at home using a special kit supplied by the hospital. She also had blood samples the usual way when attending her routine clinic appointments.

Fflur had to wash and dry her hands before doing the pin prick at home and make sure her hands were warm. She did the pin prick on her middle finger then had to apply a sterile plaster to protect it. She then had to allow the blood sample to dry overnight out of sunlight, and place in a special card called a Guthrie Card and put it in a wallet. The wallet was sealed in another special bag called a Ziploc bag that was posted back to the researchers. All the kits, postage and packing were provided by the researchers.

Fflur enjoyed taking part because it helps others and having a pin prick is better than having blood samples taken with needles.

All the equipment was provided and special envelopes to send Ffleurs blood spot tests to the…

Age at interview 12

Gender Female

Age at diagnosis 11

The information explained that the study was about different ways of taking blood samples. Fflur…

Age at interview 12

Gender Female

Age at diagnosis 11