Kyrun

More about me...
Kyrun was treated for meningitis but was later told he had systemic JIA. He said he felt ...
Kyrun was treated for meningitis but was later told he had systemic JIA. He said he felt ...
Kyrun’s mum was very upset when the doctor said that Kyrun had systemic JIA. She thought ...
Kyrun’s mum was very upset when the doctor said that Kyrun had systemic JIA. She thought ...
Kyrun was given a story book about arthritis when he was first diagnosed. It did not talk about...
Kyrun was given a story book about arthritis when he was first diagnosed. It did not talk about...
Kyrun’s struggled to get through to his doctors on the phone. He used a “yellow card system” at A...
Kyrun’s struggled to get through to his doctors on the phone. He used a “yellow card system” at A...
Kyrun was asked if he would like to try strong painkiller injections. He decided not to. He did...
Kyrun was asked if he would like to try strong painkiller injections. He decided not to. He did...
Kyrun lifted weights to strengthen his arms in case he needed to push himself in a wheelchair. He...
Kyrun lifted weights to strengthen his arms in case he needed to push himself in a wheelchair. He...
Kyrun's fatigue was influenced by a number of things. His medications made him drowsy but he had...
Kyrun's fatigue was influenced by a number of things. His medications made him drowsy but he had...
Kyrun avoids drink around the time he takes tocilizumab because it makes him sick and dehydrated....
Kyrun avoids drink around the time he takes tocilizumab because it makes him sick and dehydrated....
I don’t drink when I have my tocilizumab a week before or a week after. Because it affects it really badly, because I learnt from my mistakes. It makes me puke tremendously, I’m out and it makes me so dehydrated when I haven’t got like the tocilizumab in my system, and I know like when I have it, loads of it pumped into me in the week after, before it’s like proper getting like all over my body you can feel it and it makes you when you drink it makes you just try to chuck out all like the substances that the drug, drink so. But my nurses said there’s no harm in you having a drink now and then, but doctors are like, “No don’t drink.” But it’s, they say you can, it’s not, it’s not illegal to drink with medication so it’s your own personal choice, that’s how I think about it. And if it makes you feel good at that particular time then do it.
Kyrun tried marijuana to help get the pain under control but he felt guilty afterwards because it...
Kyrun tried marijuana to help get the pain under control but he felt guilty afterwards because it...
Kyrun’s older brother lives away from home and forgets how much arthritis affects Kyrun. His...
Kyrun’s older brother lives away from home and forgets how much arthritis affects Kyrun. His...
Kyrun’s friends have stuck by him since his diagnosis. They treat him as one of the lads and went...
Kyrun’s friends have stuck by him since his diagnosis. They treat him as one of the lads and went...
Having arthritis can lead to new opportunities such as meeting friends and driving, so “keep your...
Having arthritis can lead to new opportunities such as meeting friends and driving, so “keep your...
Kyrun's video diary - Clip 1
Kyrun's video diary - Clip 1
Kyrun has systemic onset juvenile idiopathic arthritis. He was diagnosed when he was six years old. His arthritis has never been managed for more than three months. He has had lots of treatment and spent months at a time in hospital.
Kyrun's video diary - Clip 2
Kyrun's video diary - Clip 2
Kyrun has systemic onset juvenile idiopathic arthritis. He was diagnosed when he was six years old. His arthritis has never been managed for more than three months. He has had lots of treatment and spent months at a time in hospital.
Kyrun's video diary - Clip 3
Kyrun's video diary - Clip 3
Kyrun has systemic onset juvenile idiopathic arthritis. He was diagnosed when he was six years old. His arthritis has never been managed for more than three months. He has had lots of treatment and spent months at a time in hospital.
Kyrun's video diary - Clip 4
Kyrun's video diary - Clip 4
Kyrun has systemic onset juvenile idiopathic arthritis. He was diagnosed when he was six years old. His arthritis has never been managed for more than three months. He has had lots of treatment and spent months at a time in hospital.